Milestone 12.K

ADRD Specific Milestone

Leverage ongoing initiatives on the science of inclusion to facilitate community engagement, understanding, recruitment, and long-term retention of populations experiencing AD/ADRD health disparities.

Success Criteria

  • Support research to develop new community-based strategies (e.g., specific language and outreach mechanisms/venues) to recruit, retain, and engage study participants from diverse populations, based the way each population understands and recognizes AD/ADRD.
  • Develop, disseminate and implement a national strategy for AD/ADRD clinical research to increase engagement and retention of diverse AD/ADRD patients and caregivers in clinical research. Refine this strategy on an iterative basis to reflect emerging best practices in participant engagement.
  • Track subject recruitment in clinical trials by gender, race/ethnicity, socioeconomic status, geographic region, and other key features that inform the understanding of health disparities and outcomes across diverse populations.

Research Implementation Area
Recruitment and Citizen Engagement
Timeline
2016–2019
Status
In Progress

Implementation Activities

Research Programs and Resources

Relevant Recommendations