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Milestone 12.D

Convene a meeting with key stakeholders and organizations including representatives from the All of Us Research Program (formerly the NIH Precision Medicine Initiative) to discuss policies for streamlining and innovating patient/participant consent and data sharing.


Success Criteria

  • Align guidelines for streamlined electronic consenting and other consenting models that give ownership of health care data to patients and study participants with All of Us and FDA.


Research Implementation Area
Recruitment and Citizen Engagement
Timeline
2016–2023
Status
To Be Initiated

Relevant Recommendations