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Health Equity: Inclusion and retention of underrepresented populations in clinical research (Milestone 12.K)

AD-Related Dementias Focus

Leverage ongoing initiatives on the science of inclusion to facilitate community engagement, understanding, recruitment, and long-term retention of populations experiencing AD/ADRD health disparities.

Success Criteria

  • At least one new project to develop new community-based strategies to recruit, retain, and engage study participants from diverse populations.
  • Develop, disseminate, and implement a national strategy for AD/ADRD clinical research to increase engagement and retention of diverse patients and caregivers.
  • Track subject recruitment in clinical trials by gender, race/ethnicity, socioeconomic status, geographic region, and other key features.

Summary of Key Accomplishments

The NIA Health Disparities Research Framework showcases priorities and investments in this important aging research area. The Framework outlines four key levels of analysis related to disparities research–environmental, sociocultural, behavioral, and biological—with priority focus areas in each level. This framework complements the NIA National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research.

The key accomplishments summary is current as of July 2022.

Research Implementation Area
Recruitment and Citizen Engagement

Accomplishments/Implementation Activities

Research Programs and Resources

Relevant Recommendations

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