Health Equity: Inclusion and retention of underrepresented populations in clinical research (Milestone 12.K)
AD-Related Dementias Focus
Leverage ongoing initiatives on the science of inclusion to facilitate community engagement, understanding, recruitment, and long-term retention of populations experiencing AD/ADRD health disparities.
- At least one new project to develop new community-based strategies to recruit, retain, and engage study participants from diverse populations.
- Develop, disseminate, and implement a national strategy for AD/ADRD clinical research to increase engagement and retention of diverse patients and caregivers.
- Track subject recruitment in clinical trials by gender, race/ethnicity, socioeconomic status, geographic region, and other key features.
Summary of Key Accomplishments
The NIA Health Disparities Research Framework showcases priorities and investments in this important aging research area. The Framework outlines four key levels of analysis related to disparities research–environmental, sociocultural, behavioral, and biological—with priority focus areas in each level. This framework complements the NIA National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research.
The key accomplishments summary is current as of July 2022.
- Research Implementation Area
- Recruitment and Citizen Engagement
Research Programs and Resources
- Alzheimer’s Disease and Related Dementias Clinical Studies Recruitment Planning Guide (PDF, 4.64M)
- ADORE: Alzheimer’s and Dementia Outreach, Recruitment and Engagement Resources
- National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research