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Milestone 12.K

AD Related Dementias – Specific

Leverage ongoing initiatives on the science of inclusion to facilitate community engagement, understanding, recruitment, and long-term retention of populations experiencing AD/ADRD health disparities.


Success Criteria

  • Support research to develop new community-based strategies (e.g., specific language and outreach mechanisms/venues) to recruit, retain, and engage study participants from diverse populations, based the way each population understands and recognizes AD/ADRD.
  • Develop, disseminate and implement a national strategy for AD/ADRD clinical research to increase engagement and retention of diverse AD/ADRD patients and caregivers in clinical research. Refine this strategy on an iterative basis to reflect emerging best practices in participant engagement.
  • Track subject recruitment in clinical trials by gender, race/ethnicity, socioeconomic status, geographic region, and other key features that inform the understanding of health disparities and outcomes across diverse populations.

Summary of Key Accomplishments

The NIA Health Disparities Research Framework showcases priorities and investments in this important aging research area. The Framework outlines four key levels of analysis related to disparities research–environmental, sociocultural, behavioral, and biological—with priority focus areas in each level. This framework complements the NIA National Strategy for Recruitment and Participation in Alzheimer's and Related Dementias Clinical Research.

This information is current as of July 2022.


Research Implementation Area
AD Related Dementias - Specific
Timeline
2016–2023
Status
Achieved

Accomplishments/Implementation Activities

Research Programs and Resources

Relevant Recommendations

nia.nih.gov

An official website of the National Institutes of Health