Public Private Partnerships: Consensus nomenclature (Milestone 14.F)
Update consensus on AD/ADRD nomenclature necessary to identify target populations for intervention research; clarify role of symptom presentation and presence of biomarkers in new nomenclature. Determine impact on patient/clinician communication about dementia diagnosis and management. Determine impact on public understanding about dementia.
Completed consensus document reflecting research and clinician views on incorporating symptom and biomarker information.
Conduct research in populations with varying educational, cultural, income and racial/ethnic backgrounds.
Summary of Key Accomplishments
An interagency Dementia Nomenclature workgroup has been established to facilitate cross-cutting stakeholder discussion on barriers, opportunities, and strategies to develop consistent, accurate, and meaningful language for cognitive impairment and dementia that is useable or at minimum interoperable among scientists, care providers and the public. The workgroup is comprised of non-federal and federal members, with NIH represented by NIA and NINDS. The workgroup held two workshops in 2021 to share their findings with NIH and other researchers and stakeholders.
This information is current as of March 2022.
- Research Implementation Area
- Public Private Partnerships
- In Progress
Research Programs and Resources
- Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers, Theme 4 on nomenclature and diverse research participation