MED: Best practices for ADRD research data sharing (Milestone 3.I)
In Progress
Timeline Start - End
2022 - 2032Research Implementation Area
Data Sharing and ReproducibilityAD-Related Dementias Focus
Conduct research to improve pre- and post-data collection harmonization and sharing practices across multiple etiology cognitive impairment and dementia studies.
Success Criteria
- One initiative to develop and promote incorporation of common data elements (CDEs) and best practices for standardized consent language to facilitate research, including by data and biologicals sharing, that addresses real world cognitive impairment and dementia in diverse populations of the United States.
Summary of Key Accomplishments
This milestone has just been initiated. Accomplishments are forthcoming.
The key accomplishments summary is current as of November 2022.