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FTD Basic and Clinical Research: Data and research infrastructure (Milestone 3.G)


Timeline Start - End

2020 - 2023

Research Implementation Area

Data Sharing and Reproducibility

Develop data and resource infrastructures to support management and collaborative analysis of diverse clinical, imaging, genetic, molecular, and biomarker data and resources from FTD basic science and clinical studies.

Success Criteria

  • Support one or more platform(s) that allow the research community to visualize and access clinical data, biospecimens, neuropathological and genetic resources.

Summary of Key Accomplishments

The NIH-funded ALLFTD study has now established infrastructure for sharing clinical data, biospecimens, and neuropathological and genetic resources through several in-house or established existing repositories supported by NIA. ALLFTD is also part of the FTD Prevention Initiative (FPI), an international consortium of clinical FTD researchers for supporting clinical trials and data sharing. The FPI has generated tools for visualizing clinical data across multiple cohorts, and this has led to the development of new disease progression models.

The key accomplishments summary is current as of March 2022. 

Accomplishments/Implementation Activities

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