AD/ADRD Nomenclature: Standardized research, clinical practice, and stakeholder nomenclature (Milestone 14.N)
Timeline Start - End2020 - 2024
Research Implementation AreaPublic Private Partnerships
AD-Related Dementias Focus
Integrate and refine recommendations from the Research, Clinical Practice, and Public Stakeholder Working Groups into standardized, acceptable and accurate nomenclature that works across the spectrum of stakeholders.
- Develop unambiguous names or terms for cognitive impairment and dementia that are interoperable or identical across research, clinical practice, and public stakeholders.
Summary of Key Accomplishments
The Dementia Nomenclature Initiative (DeNomI) DeNomI has formed research, clinical and public stakeholder working groups and will report out to the NAPA Council. The DeNomI initiative has a goal of increasing everyone’s, including the general public’s, understanding of cognitive impairment including dementia diagnoses by using plain and clear language that advances health equity when discussing dementia, without sacrificing accuracy of terminology.
The key accomplishments summary is current as of July 2022.
- 2019 ADRD Summit: Dementia Nomenclature, Focus Area 2: Integration and Interoperability of Dementia Nomenclature, Milestone 2