AD/ADRD Nomenclature: Research, clinical practice, and stakeholder working groups (Milestone 14.L)

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Success Criteria

• Establish working groups to draft recommendations to develop, refine and clarify dementia nomenclature for research, clinical practice, and the public.

Summary of Key Accomplishments

In 2017, the topics of AD/ADRD nomenclature terminology was elevated to the level of a NAPA Council recommendation by the public members of the Advisory Council (Recommendation 4: Emphasis should be given to the standardization of terminology in dealing with cognitive and dementing disorders). The NAPA Council requested that an outside committee be formed, and dementia nomenclature is now being pursued by the Dementia Nomenclature Initiative (DeNomI).

The key accomplishments summary is current as of July 2022.

Accomplishments/Implementation Activities

Research Programs and Resources

• Elevated to National Plan: 2016 Update; Appendix 2, Rec 4
• Elevated to National Plan: 2017 Update; Appendix 2, Rec 4
• Research Summit on Dementia Care: Terminology Issues
• ADRD Summit 2019 Nomenclature Session
• Dementia Nomenclature Initiative

Relevant Recommendations

• 2016 ADRD Summit: Special Joint NGO & MED Topic: Addressing Nomenclature for Discussing Cognitive Impairment and Dementia, Recommendation 2 and 7

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