Recruitment and Citizen Engagement Milestones
12.A-12.L
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ID
Title
Status
12.A
Recruitment: Diverse community partnerships
Provide funding for clinical research studies to build diverse community partnerships needed to increase research participation.
Status
In Progress
12.B
Recruitment: Federally funded synergies
Create synergies between federally funded programs such as PCORI and CTSAs to make community involvement less expensive...
Status
In Progress
12.C
Recruitment: Logistical barriers
Provide supplemental support for clinical research on AD and related dementias to overcome the major logistical barriers to participation...
Status
In Progress
12.D
Recruitment: Streamlining participant consent
Convene a meeting with key stakeholders and organizations including representatives from the NIH Precision Medicine Initiative ...
Status
To Be Initiated
12.E
Recruitment: Electronic consent pilot
Pilot the use of electronic consent which provides participants an option for broad sharing of de-identified data...
Status
In Progress
12.F
Recruitment: Citizen science
Develop and deploy citizen science methods to engage diverse and underrepresented populations...
Status
In Progress
12.G
Recruitment: Federal public education campaign
Establish a partnership among NIH and other federal agencies to develop a national public education campaign...
Status
In Progress
12.H
Recruitment: Share best practices
Collaborate with research scientists to identify, evaluate and increase knowledge about best practices for recruitment and retention of research participants.
Status
Achieved
12.I
Recruitment: Update central resources
Establish a working group including clinical trial recruitment experts to dynamically evaluate and update the materials and information provided in the central resource.
Status
Achieved
12.J
Recruitment: Awareness of registries
Collaborate with external organizations to increase awareness of large-scale registries that encompass the spectrum of the disease ...
Status
Achieved
12.K
Health Equity: Inclusion and retention of underrepresented populations in clinical research
Develop novel and identify existing community engagement and outreach methods to facilitate engagement, understanding and partnership with health disparities populations.
Status
Achieved
12.L
Health Equity: Inclusion of diverse communities in AD/ADRD research
Advance equity in AD/ADRD research via inclusion science to improve representative sampling and retention of diverse communities.
Status
In Progress