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Milestone 1.J

AD Related Dementias – Specific

Clarify the epidemiology of health disparities in AD/ADRD prevalence and incidence by documenting and monitoring trends in health disparities in AD/ADRD prevalence and incidence over time.

Success Criteria

  • Initiate at least one study that assesses the full spectrum of AD/ADRD (i.e. AD, FTLD, VCID, LBD and mixed dementias) prevalence, incidence, trends over time, and long-term outcomes in diverse populations (e.g. racial/ethnic, socioeconomic, geographic) and in populations that experience health disparities. To ensure valid estimates this study is to be embedded within large scale community‐based health surveillance systems, potentially including primary care, and must control for confounding factors including but not limited to stigma and under diagnosis. The study must collect participant data across the full range of social determinants of health including race/ethnicity, nativity, primary language, income and wealth, educational background, gender identity and sexual orientation, and geographic location in relevant research programs. Genomic sex and ancestry should be documented separately from self-identified gender and race/ethnicity, as these are different variables.

  • Develop and release a report on the results of this study.

Summary of Key Accomplishments

Several NIH-funded studies are examining the prevalence/incidence of AD-type dementia or individual ADRDs in diverse populations. For example, the NINDS-funded VCID and Stroke in a Bi-racial National Cohort (aka REGARDS) is a population-based study that follows more than 6000 participants aged 75+ and is collecting data on racial and geographic disparities in dementia and stroke as well as their associated risk factors.

This information is current as of July 2022.

Research Implementation Area
AD Related Dementias - Specific
In Progress

Accomplishments/Implementation Activities

Funding Initiatives

Research Programs and Resources

Relevant Recommendations

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