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Milestone 4.P

ADRD Specific Milestone

Create an international FTD clinical trial network.


Success Criteria

  • Develop a patient registry for FTD clinical studies and a centralized database for de-identified clinical, genetic and biomarker data that can be shared with the broader research community to refine disease models, clinical endpoints, and trial design. Focused FTD clinical trial platforms should be established. Underserved and minority group representation within the clinical trial registry should reflect population demographics. Coordinate with related existing national and international efforts.


Research Implementation Area
Translational Tools, Infrastructure and Capabilities
Timeline
2020–2025
Status
To Be Initiated

Relevant Recommendations