Health Equity: Disseminate culturally validated cognitive assessment tools (Milestone 11.I)
Timeline Start - End2016 - 2025
Research Implementation AreaEnabling Technologies and Disease Monitoring
AD-Related Dementias Focus
Increase availability and utilization of harmonized culturally and linguistically valid assessment tools within ongoing and newly generated studies of AD/ADRD and cognitive health intervention trials.
- Use validated assessment tools designed to detect early cognitive changes in new studies and clinical trials for AD/ADRD that include diverse patient populations experiencing health disparities.
- Facilitate effective health disparities AD/ADRD research by generating a dedicated resource for housing and disseminating a validated minimal core of culturally and linguistically appropriate best practices, paradigms, and tools for assessing cognitive impairment and dementia in diverse populations.
Summary of Key Accomplishments
Through studies like the NIH-funded DetectCID consortium, researchers are developing several novel cognitive impairment assessments that can aid in early detection of dementia-related cognitive decline in primary care and other everyday clinical settings. Now in phase 2, DetectCID is broadening the testing and validation of the most promising assessments with a larger number of research participants – at least half of which are from racial/ethnic minority groups. It is hoped that validated results from DETECT CID can be used to develop widely-available resources and screening measures to detect early cognitive changes in diverse populations.
The key accomplishments summary is current as of July 2022.
- RFA-NS-19-012: Post-Stroke Vascular Contributions to Cognitive Impairment and Dementia (VCID) in the United States Including in Health Disparities Populations
- RFA-NS-20-013: White Matter Disease Etiology of Dementia in the U.S. Including in Health Disparities Populations
- NOT-NS-21-047: Administrative Supplements to Promote Diversity for NINDS Alzheimer's Disease and Alzheimer's Disease-Related Dementias (AD/ADRD) Awardees
Research Programs and Resources
- NIH Toolbox
- Diverse VCID: White Matter Lesion Etiology of Dementia in Diverse Populations
- Determinants of Incident Stroke Cognitive Outcomes and Vascular Effects on Recovery (DISCOVERY)
- Select projects funded in FY21