Health Equity: Research on disparities in health care access (Milestone 13.M)
Timeline Start - End2020 - 2027
Research Implementation AreaResearch on Care and Caregiver Support
AD-Related Dementias Focus
Prioritize infrastructure and policy research to understand individual, community, and societal drivers of inequities in cost of and access to treatments and care, and the impact on AD/ADRD outcomes.
- Establish a national database for health equity in dementia research focused on the impact of social determinants of health, outcomes, treatment, and provision of quality care.
- At least two new research studies in health disparity populations on policy factors that impact access to AD/ADRD care.
- At least one national study modeling and assessing the economic impact of improving access and/or cost of care in populations experiencing AD/ADRD health disparities.
Summary of Key Accomplishments
NIH-funded studies are examining factors, including different social determinants of health, that can impact access to, quality of, and/or overall cost of dementia-related care. For example, data from the NINDS-funded REGARDS VCID study revealed that better cardiovascular health is associated with lower risk for inpatient encounters and lower inpatient and outpatient healthcare expenditures. Going forward, under the NIMHD-led Structural Racism RFA (RFA-MD-21-004), NINDS anticipates funding at least one new application looking at structural factors that may impact access, treatment, and care of individuals from diverse backgrounds that are at risk for developing ADRD.
The key accomplishments summary is current as of July 2022.
- NOT-NS-21-047: Administrative Supplements to Promote Diversity for NINDS Alzheimer's Disease and Alzheimer's Disease-Related Dementias (AD/ADRD) Awardees
Research Programs and Resources
- 2019 ADRD Summit: Health Disparities in AD/ADRD, Focus Area 3: Monitoring Changes in AD/ADRD Disparities, Milestone 6
- 2022 ADRD Summit: Health Equity in AD/ADRD, Milestone 8