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Care & Caregiving: Palliative care research networks (Milestone 13.G)


Timeline Start - End

2015 - 2022

Research Implementation Area

Research on Care and Caregiver Support

Leverage existing palliative care research networks to develop and advance interventions for palliative and hospice care of persons with advanced dementia and their families. 

Success Criteria

  • Launch cross-disciplinary projects to design and test clinical interventions and models of palliative and hospice care for persons with advanced dementia and their families

  • These programs should address needs across diverse cultural subgroups, care settings, and rural/urban locales. 

Summary of Key Accomplishments

Through a partnership with the owner of a large, nationwide network of long-term services and supports facilities, the NIA-funded Penn Roybal Center on Palliative Care in Dementia provides research infrastructure and funds pilot studies to develop, test, and implement palliative care interventions for PLWD and their family caregivers using behavioral economics and data science strategies. Through another infrastructure project, the Claude D. Pepper Older Americans Independence Center at the Icahn School of Medicine at Mount Sinai conducts and facilitates interdisciplinary research on palliative care and created a national network of geriatric palliative care researchers in collaboration with Mount Sinai's National Palliative Care Research Center. NIA has also funded multiple research projects with a variety of populations examining different aspects of intervention development for palliative and hospice care, including those focused on improving advance care planning for PLWD, adding external specialty palliative care support to PLWD in nursing homes, improving palliative care at the health systems level, and promoting quality end-of-life experiences, as well as assessing and addressing lucidity in dementia.

The key accomplishments summary is current as of March 2022. 

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