Dementia Care and Impact of Disease Milestones
13.A-13.R
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ID
Title
Status
13.A
Care & Caregiving: Meeting to establish a research agenda
Convene an exploratory expert meeting to delineate and prioritize an interdisciplinary research agenda focused on assessing the impact of informal and formal caregiving...
Status
Achieved
13.B
Care & Caregiving: Impact of caregiving measures
Launch research programs to develop and validate assessments of the psychological, financial, and physical health impact of caregiving.
Status
Achieved
13.C
Care & Caregiving: Caregiving data infrastructure
Establish data infrastructure for the study of dementia caregiving.
Status
Achieved
13.D
Care & Caregiving: Secondary data analysis
Support secondary analysis of data from population based and intervention studies with appropriate content related to informal and formal caregiving.
Status
In Progress
13.E
Care & Caregiving: Partner with community organizations to support a research agenda
Partner with community organizations to support a research agenda that will lead to the development of a national framework for dementia caregiver support in the community.
Status
In Progress
13.F
Care & Caregiving: Comparative effectiveness research
Partner with insurers (including CMS) to conduct comparative effectiveness research to determine which existing evidence-based interventions to reduce burden in caregivers are effective...
Status
In Progress
13.G
Care & Caregiving: Palliative care research networks
Leverage existing palliative care research networks to develop and advance interventions for palliative and hospice care of persons with advanced dementia and their families.
Status
Achieved
13.H
Care & Caregiving: Intervention development and dissemination
Create research programs to evaluate novel and innovative dissemination and implementation methods...
Status
In Progress
13.I
Care & Caregiving: Technology-based dementia assessment and care
Support research on technology-based dementia assessment, care and management.
Status
Achieved
13.J
Care & Caregiving: Dementia care workforce
Expand research on the care workforce and supply of skilled labor. Identify the barriers to entry, challenges of retention, and causes and effects of turnover.
Status
In Progress
13.K
Care & Caregiving: Dementia-friendly communities
Expand research leading to understanding of effectiveness and impacts of non-residential and residential care of PWD...
Status
In Progress
13.L
Multiple Etiology Dementia: Implementation research for dementia care
Conducting implementation research on proven dementia care programs
Status
In Progress
13.M
Health Equity: Research on disparities in health care access
Increase policy-relevant research on disparities in access to care
Status
In Progress
13.N
Care & Caregiving: Health care access, use, quality disparities
Support a social and behavioral research program to elucidate the mechanisms or sources of disparities in health care access, utilization, or quality of care for persons living with AD/ADRD and their care partners.
Status
In Progress
13.O
Care & Caregiving: Care integration
Support a research program that focuses on the integration of long-term services and supports (LTSS), home-based care, and medical care.
Status
In Progress
13.P
Care & Caregiving: Policy and payment models
Support a research program to address the impact of policy and payment models and insurance on persons living with dementia.
Status
In Progress
13.Q
Care & Caregiving: Dementia care-related data infrastructure for clinical trials
Support the development of AD/ADRD data and clinical infrastructure and harmonization processes that allow for the integration of health care, formal and informal caregiving, and other care-related data.
Status
In Progress
13.R
Care & Caregiving: Care partner ethics
Support a research program on the ethical implications of inclusion of the care partner in the care team for the person living with AD/ADRD.
Status
In Progress