Care & Caregiver Support
Research on Care and Caregiver Support
- Milestone 13.A •
Convene an exploratory expert meeting to delineate and prioritize an interdisciplinary research agenda focused on assessing the impact of informal and formal caregiving...
- Milestone 13.B •
Launch research programs to develop and validate assessments of the psychological, financial, and physical health impact of caregiving.
- Milestone 13.C •
Establish data infrastructure for the study of dementia caregiving.
- Milestone 13.D •
Support secondary analysis of data from population based and intervention studies with appropriate content related to informal and formal caregiving.
- Milestone 13.E •
Partner with community organizations to support a research agenda that will lead to the development of a national framework for dementia caregiver support in the community.
- Milestone 13.F •
Partner with insurers (including CMS) to conduct comparative effectiveness research to determine which existing evidence-based interventions to reduce burden in caregivers are effective...
- Milestone 13.G •
Leverage existing palliative care research networks to develop and advance interventions for palliative and hospice care of persons with advanced dementia and their families.
- Milestone 13.H •
Create research programs to evaluate novel and innovative dissemination and implementation methods...
- Milestone 13.I •
Support research on technology-based dementia assessment, care and management.
- Milestone 13.J •
Expand research on the care workforce and supply of skilled labor. Identify the barriers to entry, challenges of retention, and causes and effects of turnover.
- Milestone 13.K •
Expand research leading to understanding of effectiveness and impacts of non-residential and residential care of PWD...
- Milestone 13.N •
Support a social and behavioral research program to elucidate the mechanisms or sources of disparities in health care access, utilization, or quality of care for persons living with AD/ADRD and their
- Milestone 13.O •
Support a research program that focuses on the integration of long-term services and supports (LTSS), home-based care, and medical care.
- Milestone 13.P •
Support a research program to address the impact of policy and payment models and insurance on persons living with dementia.
- Milestone 13.Q •
Support the development of AD/ADRD data and clinical infrastructure and harmonization processes that allow for the integration of health care, formal and informal caregiving, and other care-related
- Milestone 13.R •
Support a research program on the ethical implications of inclusion of the care partner in the care team for the person living with AD/ADRD.
AD Related Dementias - Specific
- Milestone 13.L •
Conducting implementation research on proven dementia care programs
- Milestone 13.M •
Increase policy-relevant research on disparities in access to care
- Milestone 14.N •
Integrate and refine recommendations from working groups into standardized, acceptable and accurate nomenclature that works across the spectrum of stakeholders.