Care & Caregiver Support

Convene an exploratory expert meeting to delineate and prioritize an interdisciplinary research agenda focused on assessing the impact of informal and formal caregiving...

Launch research programs to develop and validate assessments of the psychological, financial, and physical health impact of caregiving.

Establish data infrastructure for the study of dementia caregiving.

Support secondary analysis of data from population based and intervention studies with appropriate content related to informal and formal caregiving.

Partner with community organizations to support a research agenda that will lead to the development of a national framework for dementia caregiver support in the community.

Partner with insurers (including CMS) to conduct comparative effectiveness research to determine which existing evidence-based interventions to reduce burden in caregivers are effective...

Leverage existing palliative care research networks to develop and advance interventions for palliative and hospice care of persons with advanced dementia and their families.

Create research programs to evaluate novel and innovative dissemination and implementation methods...

Support research on technology-based dementia assessment, care and management.

Expand research on the care workforce and supply of skilled labor. Identify the barriers to entry, challenges of retention, and causes and effects of turnover.

Expand research leading to understanding of effectiveness and impacts of non-residential and residential care of PWD...

Support a social and behavioral research program to elucidate the mechanisms or sources of disparities in health care access, utilization, or quality of care for persons living with AD/ADRD and their

Support a research program that focuses on the integration of long-term services and supports (LTSS), home-based care, and medical care.

Support a research program to address the impact of policy and payment models and insurance on persons living with dementia.

Support the development of AD/ADRD data and clinical infrastructure and harmonization processes that allow for the integration of health care, formal and informal caregiving, and other care-related

Support a research program on the ethical implications of inclusion of the care partner in the care team for the person living with AD/ADRD.

Conducting implementation research on proven dementia care programs

Increase policy-relevant research on disparities in access to care

Integrate and refine recommendations from working groups into standardized, acceptable and accurate nomenclature that works across the spectrum of stakeholders.