NIA Data Management and Sharing Guidance
On January 25, 2023, NIH’s new Final NIH Policy for Data Management and Sharing came into effect, replacing the 2003 NIH Data Sharing Policy. The policy requires NIH-funded researchers to submit a plan prior to award that outlines how scientific data from their research will be managed and shared. Upon approval, the plan becomes part of the terms and conditions of the grant award. To support implementation of the policy, NIH institutes and centers may provide institute-specific guidance, such as identifying preferred data sharing resources that are supported by the institute.
NIH has separate policies on Genomic Data Sharing and Model Organism Sharing that fall under the umbrella of the larger NIH Data Management and Sharing Policy. NIA developed the Alzheimer’s Disease Genomics Sharing Plan that provides specific genomic data sharing guidance to NIA grantees conducting Alzheimer's disease and related dementias research. For research related to these areas, investigators are advised to follow the appropriate policy. For all other NIA-funded research, follow the NIA-specific data sharing guidance outlined on this page.
Preparing a DMS Plan? Use these resources to help:
- DMS Policy: Explore frequently asked questions and view updates related to the policy.
- DMS Plan Format Page: This optional template can help guide formatting for your plan.
- Sample DMS Plans: Read samples generated by NIA and learn more about sample plans used at NIH.
- NIH Scientific Data Sharing: Learn more about public access and open science at NIH.
NIA-Specific Sample Plans
NIA has created sample DMS plans to assist applicants with developing plans.
|Sample Plan||Research Category|
|Clinical data from human research participants||Behavioral and Social Research|
|Survey, interview, and biological data (tiered access)||Behavioral and Social Research|
|Non-human data (primates)||Behavioral and Social Research|
|Secondary data analysis||Behavioral and Social Research|
|Survey and interview data||Behavioral and Social Research|
|*Human clinical and genomic data||Neuroscience|
|Non-human data (rodents)||Neuroscience|
|*Clinical data (human biospecimens)||Neuroscience|
|*Drug discovery including intellectual property||Neuroscience|
Note: The asterisk (*) refers to samples that use Alzheimer’s disease and Alzheimer’s disease-related dementias (AD/ADRD) data.
NIA-Specific Guidance on Data Management and Sharing
Browse the questions below to explore NIA-specific guidance on the 2023 Data Management and Sharing Policy.
There are a variety of resources investigators may leverage to develop their data management and sharing plan, including their institutional data librarians. You may also explore:
- DMPtool: Find templates for NIH data sharing policy and genomic data sharing policy.
- Data Sharing Resources for Researchers: Explore NIA-funded repositories and knowledge portals where you can submit and access data.
- Inside NIA Blog: Read recent blog posts from NIA staff on data sharing.
- PAR-23-236 and PAR-23-237: Notices of Funding Opportunity to support the development of early stage/new and established data repositories and knowledgebases.
If you have any questions, please contact your program officer.