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Future Directions in Data Sharing and Archiving Workshop

On March 23-24, 2023, NIA convened a two-day virtual workshop to explore challenges, best practices, and future directions in data sharing and data archiving. Data repository managers, industry leaders, policymakers, and researchers across diverse scientific fields and disciplines provided input on 1) developing and evaluating data management and sharing plans across a range of scientific disciplines and data types, 2) specific challenges associated with sharing data from human participants, 3) best practices and future needs in data archiving, and 4) challenges and considerations for sharing data from special populations.

Specifically, workshop participants highlighted gaps and opportunities to:

  • Standardize informed consent policies and practices to maximize data sharing while protecting the privacy of human research participants
  • Develop standards and best practices for data sharing and discoverability
  • Collaborate with diverse communities towards inclusive data sharing
  • Return results to research participants and communities

The workshop report (PDF, 478K) is now available.

nia.nih.gov

An official website of the National Institutes of Health