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Expert Meeting on Guidance on Data Sharing for NIA Studies

The National Institute on Aging (NIA) commissioned the Committee on National Statistics (CNSTAT) to convene an Expert Meeting to consider best practices for sharing longitudinal data sets. The meeting was held via web conference on May 10, 2021, in conjunction with CNSTAT’s spring annual meeting. Because longitudinal datasets have a high volume of data and complex links within individuals and families among waves of data collection, they pose unique challenges to making data public. The meeting focused on five major topics: (1) providing documentation and easy access to and use of datasets, (2) developing interfaces for accessing and finding variables, (3) creating longitudinally linked files, (4) training new users, and (5) maintaining a repository of user-generated code and data. The meeting summary is available (PDF, 473K).