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Dementia Care

Description

The Dementia Care research portfolio encompasses topics ranging from economic analyses to the development of novel care interventions. BSR supports studies of the design, organization, and financing of models of dementia care across a variety of settings and their impact on the health and well-being of persons living with dementia (PLWD). This includes research on how regulatory and economic incentives and constraints affect access, quality, and health outcomes for PLWD, as well as trends and differences in expenditures and other burdens across regions, household types, socioeconomic status, and racial/ethnic groups. Additional work focuses on assessing the level of unmet need for long term services and supports (LTSS) across all stages of disease and levels of impairment, as well as research on the paid dementia care workforce characteristics and training needs. The portfolio also includes studies of the economic impact of dementia care on individuals, families, and society; the impact of dementia diagnosis; the lived experience of PLWD, including those living alone or without care partners; technologies for aging in place; and elder mistreatment in formal care settings.

Recently, NIA partnered with the Agency for Healthcare Research and Quality (AHRQ) and the National Academies of Sciences, Engineering, and Medicine (NASEM) to assess the evidence for care interventions for persons living with Alzheimer’s disease and related dementias. The AHRQ review, Care Interventions for People Living With Dementia and Their Caregivers, and the accompanying NASEM consensus study report, Meeting the Challenge of Caring for Persons Living With Dementia and Their Care Partners and Caregivers, found opportunities to improve and strengthen the dementia care research base. Many of the research gaps identified in the AHRQ and NASEM reports have been on our radar for some time and are consistent with other feedback we use to inform our research priorities. We have invested in multiple research infrastructure projects aimed at improving the rigor of behavioral intervention development for dementia care and caregiver research, including the Roybal Centers for Translational Research on Dementia Care Provider Support and the NIA Imbedded Pragmatic AD/ADRD Clinical Trials (IMPACT) Collaboratory. These projects were designed to catalyze widespread, systems-level changes and establish a research pipeline to strengthen dementia care and caregiving intervention research, which is critical to address the gaps and opportunities raised in both reports.

Related AD+ADRD Research Implementation Milestones: 10A, 11A, 11B, 11C, 11D, 11E, 11F, 11G, 13G, 13H, 13I, 13K, 14F

Active Projects as of September 2021: Dementia care

Research Programs and Contacts

Program Contact

Relevant Area(s)

Partha Bhattacharyya

  • Pragmatic trials for dementia care in health care systems

Elena Fazio

  • Dementia care in home and community-based settings, assisted living, and nursing homes
  • Demography of paid caregiving
  • Dementia care workforce

Melissa Gerald

  • Triadic interactions with clinicians, PLWD, and care partners

Liz Necka

  • Influence of AD/ADRD on pain
  • Dyadic interactions between PLWD and care partners

Priscilla Novak

  • Financial models and healthcare costs for dementia care

Lisa Onken

  • Behavioral interventions for PLWD and their care partners

John W.R. Phillips

  • Dementia care workforce

Funding Opportunities

Active funding opportunities related to dementia care are listed below. In addition, any AD/ADRD-focused application can be submitted to NIA’s parent AD/ADRD R01 and R21 program announcements. Notices of Special Interest associated with these parent FOAs specify high priority behavioral and social research topics. For a list of all of BSR’s active funding opportunities, visit our funding opportunities and applicant resources page.

Research Investments

BSR has supported research projects focused on dementia care in AD/ADRD through targeted funding opportunity announcements. Although some of these funding opportunities are no longer active, the topics outlined in the announcements remain priority research areas for BSR. Applications on these topics should be submitted through a relevant active FOA or through NIA’s parent AD/ADRD R01 and R21 program announcements.

  • RFA-AG-22-020 -Triadic Interactions in Clinical Encounters Involving People with Alzheimer's Disease and Alzheimer's Disease-Related Dementias (AD/ADRD), Clinicians, and Care Partners.
  • NOT-AG-20-026 - Dementia Care Workforce for Those Living with Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias (AD/ADRD).
  • PAR-17-107 and PAR-17-108 - Development of Socially-Assistive Robots (SARs) to Engage Persons with Alzheimer's Disease (AD) and AD-Related Dementias (ADRD), and their Caregivers. Funded Project Descriptions.
  • RFA-AG-18-030 - Dementia Care and Caregiver Support Interventions. Funded Project Descriptions.

Related Workshops & Reports

NASEM Behavioral and Social Research and Clinical Practice Implications of Biomarker and other Preclinical Diagnostics of AD/ADRD, June 28-29, 2021

Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias, 2021

NASEM Care Interventions for Individuals with Dementia and Their Caregivers, February 2021

AHRQ Evidence Review: Care Interventions for People Living With Dementia and Their Caregivers, August 31, 2020

2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers, Summer 2020

Gaps in the Dementia Care Workforce: Research Update and Data Needs, May 23, 2019

Expert Meeting on the Demography of the Older Residential Care Population: Research Questions and Data Gaps, May 08, 2019

Pragmatic Trials of Non-Pharmacological Interventions in Dementia Care, December 1, 2017

2017 National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers, October 16-18, 2017

Innovating the Next Generation of Dementia and Alzheimer's Disease Care Interventions: Addressing the Needs of Persons Living with Dementia, Caregivers, and Care Providers July 31-August 1, 2017

Multiple Approaches to Understanding and Preventing Elder Abuse and Mistreatment, October 31, 2015

The Costs Associated with Alzheimer’s Disease, October 26, 2011

Return to BSR's AD/ADRD Main Page

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