Help shape the future of dementia home- and community-based services
A quarter century ago, nursing homes were the most common type of care available for people living with Alzheimer’s disease and related dementias. Today, people living with dementia are much more likely to desire services such as home health care, respite care, and adult day care programs. Collectively, these options are known as home- and community-based services (HCBS).
HCBS support people living with dementia in multiple aspects of daily life, including personal care, medication management, meal preparation, social engagement, and cognitive stimulation. Many families and individuals prefer HCBS because these services offer care in a familiar setting while boosting independence, well-being, and overall quality of life. HCBS also emphasize personalized care to promote individual dignity and autonomy.
Collaboration, data tools, diversity
While public and scientific interest in HCBS has grown, gaps persist in understanding their cost, quality, and accessibility to underserved communities. To address this crucial but complex need, NIA is pleased to announce the Community Care Network for Dementia (CaN-D). With support via an NIA grant, CaN-D has the following goals:
- Foster collaboration and knowledge-sharing: CaN-D aims to connect scientists and experts in the field to promote knowledge-sharing to drive breakthroughs and advancements in care.
- Develop valuable data tools: CaN-D is committed to generating data tools to aid analysis of the structure, processes, and outcome measures of dementia HCBS. Visit the CaN-D Data Hub for tools that offer valuable insights into the impact of various approaches and that can help guide evidence-based decision-making.
- Cultivate a more diverse researcher community: Recognizing the importance of supporting HCBS researchers representing diverse backgrounds and lived experiences, CaN-D aims to nurture mentorship programs and other resources to cultivate a more vibrant HCBS research community.
Share your thoughts online by Aug. 15
As CaN-D ramps up, its leaders are planning activities including mentorship programs, quarterly meetings, working groups, writing camps, an annual data workshop, and training seminars. To help shape this exciting new scientific venture and better understand the needs of the HCBS researcher community, please consider weighing in via the CaN-D expression of interest online form by Aug. 15. Individuals expressing interest will be invited to future CaN-D activities.