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Register today for the 2023 Dementia Care and Caregiving Research Summit!

Elena Fazio
Elena FAZIO,
Director, Office of AD-ADRD Strategic Coordination OASC,
Division of Behavioral and Social Research (DBSR)
Headshot of Nicole Kidwiler in a black polo with the Under Armour logo on the left side and the Towson University logo on the right side of the shirt.
Program Analyst,
Division of Behavioral and Social Research (DBSR)

The third triennial National Research Summit on Care, Services, and Supports for Persons Living with Dementia and their Care Partners/Caregivers is right around the corner, taking place virtually March 20-22. After months of planning for this meeting (also known as the Dementia Care and Caregiving Research Summit) we are happy to announce that registration is now open!

This year’s event will build on the 2017 and 2020 summits to review scientific progress, highlight promising innovations, and identify remaining unmet needs. As in the past, NIA seeks and will greatly value input from investigators, persons living with dementia (PLWD) and their care partners, those who provide health care or services and supports to PLWD, and other stakeholders.

The summit has three crosscutting themes: highlighting inclusive science, exploring outcomes that matter to PLWD and their care partners and how to live well with dementia, and improving the rigor and reproducibility of dementia care research. The priorities within these themes have been informed by the scientific steering committee and by NIA-led stakeholder panels consisting of PLWDs, caregivers, direct care workers, and advocacy organization leaders.

After the meeting, the summit steering committee will finalize a list of new critical gaps and opportunities based on the current state of the science. This information will be used to inform the NIH Alzheimer’s Disease and Related Dementias Research Implementation Milestones. You can find a list of the research gaps and opportunities from the 2020 summit here.

Session and speaker information now available!

The summit website offers detailed information on the planned sessions and confirmed speakers. The agenda includes eight scientific sessions and a plenary talk focused on the following topics:

  • Session 1: What Matters Framework and Living Well With Alzheimer’s Disease and Related Dementias
  • Session 2: Impact of Detection and Diagnosis on Individuals and Care Partners
  • Session 3: Dementia Care Models and Coordination of Care
  • Session 4: Disparities in Health Care Access, Utilization, and Quality
  • Session 5: Support for Care Partners and Caregivers
  • Session 6: Dementia Care Workforce
  • Session 7: Economic Impacts, Implications, and Approaches
  • Session 8: Approaches to Participatory Research and Diverse Recruitment and Retention in Dementia Care Research
  • Plenary Talk: Challenges and Best Practices for Dissemination and Implementation of Interventions for Persons Living With Dementia and Their Care Partners

We look forward to your participation!

The summit steering committee and co-chairs Dr. Andrea Gilmore-Bykovskyi and Dr. Julie Zissimopoulos have worked hard to ensure a wide range of perspectives are represented throughout the event. To gain insight from those not represented within the steering committee and NIA-led stakeholder panels, we also released a Request for Information this past fall, seeking input from the broader community on topics they felt should be represented at the summit. We appreciate all the input we received.

After you register, be sure to follow @NIA_BSR and @NIHAging on Twitter, and check the summit website for the latest updates. Throughout the event, you can submit a question during each session’s moderated discussion time or join the Twitter conversation using #DementiaCareSummit. We hope you can join us in March and we look forward to connecting with you!

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