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Help provide input for the 2023 Dementia Care and Caregiving Research Summit

Elena Fazio
Elena FAZIO,
Director, Office of AD-ADRD Strategic Coordination OASC,
Division of Behavioral and Social Research (DBSR)
Picture of Jessica Boten
Jessica BOTEN,
Lead Social Science Analyst,
Division of Behavioral and Social Research (DBSR)

Planning is well underway for the third triennial NIH National Research Summit on Care, Services, and Supports for Persons Living with Dementia and Their Care Partners/Caregivers, which will take place virtually March 20–23, 2023. This summit will provide an exciting opportunity to build upon the progress made in dementia care and caregiving research since our first (2017) and second (2020) events.

Participants will review research progress, highlight innovative and promising approaches, and identify remaining unmet research and care needs for the more than 6 million Americans living with clinical Alzheimer’s disease.

We have released a request for information to invite comments and suggestions on key programmatic areas, and on scientific progress to date as well as unmet research needs. We encourage all interested stakeholders — including persons living with dementia (PLWD), caregivers and care partners, dementia care providers, members of the scientific community, academic institutions, the private sector, health professionals, professional societies, advocacy groups, patient communities, as well as other interested members of the public — to submit a response by Oct. 21, 2022.

What’s planned so far

A top goal is to identify innovative approaches to accelerate research on dementia care and caregiving to ultimately address the pressing needs of individuals, families, and formal care providers. The summit will bring together diverse perspectives from PLWD, care partners, and researchers to cover topics including:

  • Dementia care models and coordination of care
  • Dementia detection and diagnosis and their relationship to dementia care
  • Improving rigor and reproducibility of interventions for PLWD and their care partners
  • Emphasizing research to address dementia health care disparities and inequities
  • Economic impacts and approaches

Please weigh in!

To make this summit as effective and productive as possible, it’s important to submit a response to our request for information by Oct. 21. Please be on the lookout for the agenda and registration on the summit website later this fall. We look forward to sharing more as plans develop!


Submitted by Christine DiLeone on October 05, 2022

Please include discussion around educating healthcare providers in care and communication!!

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