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Second research summit on dementia care, caregiving, and services is fast approaching!

Elena Fazio
Elena FAZIO,
Director, Office of AD-ADRD Strategic Coordination OASC,
Division of Behavioral and Social Research (DBSR)
Headshot of Chandra Keller
Chandra KELLER,
Social Science Analyst,
Division of Behavioral and Social Research (DBSR)

Estimates suggest that as many as 5.5 million older Americans — and many more under age 65 — are living with Alzheimer’s disease, with another 1 million Americans affected by related dementias such as frontotemporal, Lewy body, vascular, and mixed dementias. Our health care systems, nursing homes and assisted living centers, community-based service organizations, home-based care providers, families, and individual caregivers must be better prepared for this crisis through evidence-based programs and interventions to help support persons with Alzheimer’s disease and Alzheimer’s disease-related dementias (AD/ADRD) and their families with diverse needs.

After months of planning, we are pleased that the second National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is just around the corner! The event will take place March 24 and 25, 2020, at the Natcher Conference Center on the NIH campus in Bethesda, Maryland. The summit focuses on a major priority area for NIA: research with and for people with dementia and their caregivers. Participants will share individual perspectives about critical scientific gaps and opportunities to inform NIH research priorities. Input may also inform the efforts of other government agencies, nonprofit organizations, and advocacy groups.

Agenda and speaker information now available

Visit the summit website to view our tentative agenda and learn more about the speakers, presentations, and panel discussions. The event will also include live audience Q&A and audience engagement via The goal is open dialogue to address the following topics:

  • The impact of dementia
  • Long-term services and supports
  • Services in health care settings
  • Integration of long-term and medical care
  • Participation of people living with dementia and care partners in research
  • Intervention research, dissemination, and implementation
  • Research resources, methods, and data infrastructure
  • Other emerging topics.

An exciting addition this year is a poster session to feature and engage an even broader audience of early-stage investigators doing important dementia care, services, and caregiving research as well as some organizations sharing informational posters about dementia care programs. We received almost 150 poster abstract submissions for consideration and faced tough decisions in selecting posters. A list of accepted poster titles and investigators is also available online.

The posters will be displayed in the Natcher Conference Center atrium throughout the 2 days. Stop by to visit all the posters and talk with the investigators, many of whom represent the next generation of dementia care researchers, and be sure to be in the auditorium on Day 2 for the “Lightning Round Poster Previews” featuring brief summaries from selected poster presenters.

Incorporating insights from a range of perspectives

These exciting 2 days will bring together a wide range of stakeholders — academic researchers, advocacy organizations, health care systems, government agencies, the care provider workforce, persons living with dementia, and care partners — all of whom contribute to identifying key research gaps and opportunities. We hope you can be a part of it. If you haven’t already, please register to attend and add your voice to the effort. The summit will be live videocast for participants around the world who are unable to attend in person.

Whichever way you choose to participate, we look forward to connecting in March!

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