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What Latino Puerto Ricans and Non-Latinos Say When They Talk about AD

In this study, four groups of 30 persons per group defined by self-identified ethnicity (Latino Puerto Ricans or non-Latino whites) and caregiver status (caregivers or noncaregivers) completed free-listing exercises to identify the words they use when they describe Alzheimer’s disease causes, symptoms, caregiving, and research risks and benefits. The researchers identified notable differences in how Latino Puerto Ricans and non-Latino whites talk about Alzheimer’s disease and Alzheimer’s disease research. They suggest that clinicians, clinical investigators, and patient educators need to consider these differences when they conduct clinical care and research and design outreach and educational materials.

Karlawish J, Barggh FK, Augsburger D, et al. What Latino Puerto Ricans and Non-Latinos say when they talk about Alzheimer’s disease. Alzheimer's & Dementia 2011;7(2):161-170.

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