Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Videos
Displaying 1 - 50 of 63 resources.
- The Duke University and the University of North Carolina ADRC offers two videos that discuss the participant experience during spinal tap and blood draw procedures.
- The Wisconsin Alzheimer’s Disease Research Center (ADRC) offers videos explaining two biomarker procedures.
- Watch the Hope & Empowerment Through Research video to hear about the experiences of five Alzheimer's disease research participants.
- This webinar series from the Cleveland ADRC highlights medical information and social issues on brain health that are pertinent to the Black community.
- The Cleveland Alzheimer’s Disease Research Center offers information to educate patients and family members about brain donation.
- These three videos are recordings from the “Racism and Its Implications in Clinical Research” workshop hosted by the University of Pittsburgh Alzheimer’s Disease Research Center.
- This video explains how participants in LEADS, an NIA-funded study, can choose whether or not to receive genetic results and what these results mean.
- A collection of videos from the Johns Hopkins Alzheimer's Disease Research Center that helps raise awareness and provide education on Alzheimer's and research.
- Watch the Become a Research Hero video on the importance of participating in Alzheimer's disease research.
- A video webinar from NYU Alzheimer's Disease Research Center about the importance of brain donation.
- Cleveland Clinic Lou Ruvo Center offers a video, brochure, and webpage about the role research plays in helping to diagnose and find treatments for neurodegenerative diseases.
- Spotlight videos from the University of Pittsburgh Alzheimer’s Disease Research Center highlight research participants’ experiences.
- This Spanish video encourages people to have memory testing if they are having any difficulties remembering.
- This video discusses the importance of healthy volunteer participation in Alzheimer’s disease research.
- A video from the University of California, San Francisco, explains why diversity in research is important, and steps researchers can take to increase diversity in their studies.
- This webpage, from Johns Hopkins Alzheimer's Disease Research Center, helps educate readers about why clinical research studies are important, who can participate in research, and the differences between observational and intervention studies.
- With printable materials and videos, this dementia toolkit is designed to help students, health care professionals, families, and members of the community understand more about dementia.
- A collection of videos about Alzheimer’s disease and clinical trials, including topics on clinical trials awareness and recruiting.
- Dr. Jonathan Jackson and the Massachusetts Alzheimer’s Disease Research Center give a webinar about direct actions researchers can take to improve diversity and equity in clinical research studies.
- This trailer gives viewers an overview of the documentary, Too Soon to Forget: The Journey of Younger Onset Alzheimer’s Disease, which tells the story of nine families who experienced early-onset Alzheimer’s disease.
- This webinar covers the current drug therapies available to help treat Alzheimer’s disease, as well as current and future drug research studies.
- The BrainTalk series are videos as well as slides presentations on a variety of topics ranging from research participation to exercise.
- This video describes the process of joining a clinical trial and the impact it can make on research.
- This Spanish language video from the Shiley-Marcos Alzheimer’s Disease Research Center covers the symptoms of Alzheimer’s disease and the need to include the Latino community in clinical research.
- The BrightFocus Foundation’s Clinical Trials Finder asks a series of questions to help users find an appropriate Alzheimer’s disease clinical trial. The foundation has also developed a brochure, “Clinical Trials: Your Questions Answered.” BrightFocus funds scientific research worldwide related to Alzheimer’s disease. “Turning Point” is a documentary (2.5 hours, 2017) that provides an inside look at the doctors, scientists and patients who are working to uncover the mysteries of Alzheimer’s...
- “Conversando con los Cuidadores” is a series of nine short videos that offer practical advice from real people who care for family members with dementia.
- This annual lecture series on healthy brain aging and prevention is presented by the University of California, Davis Alzheimer's Disease Center (ADC).
- This audiovisual novella presents the story of a Mexican family that is struggling to figure out what is wrong when their patriarch starts to forget things.
- This 3-minute video features Dan Gasby, who with his wife, the celebrity B. (Barbara) Smith, has advocated for greater public awareness of the disease and for participation in clinical trials. Smith was diagnosed with early Alzheimer’s disease in 2014.
- "Curing Alzheimer's: Clinical Trials Are the Key" is a 24-page guide, available in English and Spanish, that provides information on clinical trials, Alzheimer's disease, and participating in Alzheimer's disease research. An English-language video also provides information to prospective trial participants.
- A 2-minute video features Dr. Griffin P. Rodgers, director of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), as he explains the importance of participating in clinical trials.
- Through videos and in-person sessions, this program encourages community members to obtain insight into what it’s like to live with dementia and to turn that understanding into action.
- This 12-minute video, entitled "GAPS," addresses the challenges presented by Alzheimer’s disease in Asian American communities.
- This webpage and 5-minute video encourages the participation of American Indian, Alaska Native, and other indigenous communities in Alzheimer’s disease clinical trials.
- The Stanford ADRC provides videos and presentations about Alzheimer's and related dementias in Spanish.
- NIA has created four video stories profiling participants in Alzheimer’s disease clinical trials. These videos feature participants from different walks of life who discuss what motivates them and how research staff support them to participate in studies and trials. The videos are intended to be shared as part of engagement and recruitment efforts for clinical studies. Each video was made with a specific audience in mind: Will’s Story—When both of Will’s parents developed dementia, he and his...
- One-page flyer that lists monthly topics for the Facebook Live Series, "Ask the Doc: Alzheimer's Research Today."
- This online toolbox offers resources from Clinical & Translational Science Awards (CTSA) programs, and their community health partners, to help investigators across the life cycle of their projects.
- Public-directed page of the NIH NeuroBioBank providing information on donation and answering frequently asked questions.
- Webnovela Mirela is a program for Hispanic/Latino caregivers of individuals with Alzheimer's or other dementia.
- Strengthening Translational Research in Diverse Enrollment (STRIDE) is a collaborative project focused on developing innovative approaches to enhancing informed consent procedures, with a goal of improving research literacy among underserved populations.
- The Global Brain Health Institute is an initiative that works to reduce the scale and impact of dementia around the world by training and supporting a new generation of leaders.
- A webpage of the Community Outreach Program at the UCSF Memory and Aging Center, providing information and resources.
- UCSF’s Memory and Aging YouTube Channel covers topics on research, researchers, caregiving, and how the brain works.
- This toolkit is designed to help organizations educate their constituencies on the importance of having members of minority populations participate in clinical trials.
- This NIA video series covers topics about participating in Alzheimer's disease research.
- This webinar series covers regulatory documentation for clinical trials, informed consent, good clinical practice, and many other topics.
- The Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis held a workshop on issues surrounding recruitment of African-American participants into Alzheimer’s disease (AD) research studies. The workshop, titled “African American Participation in AD Research: Effective Strategies Workshop,” was held at Washington University on October 10, 2018.
- The 36-second time-lapse video shows the progression of Alzheimer's disease in the brain.