Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Research Articles
Displaying 171 - 180 of 203 resources.
- Recruiting minorities can be challenging for clinical researchers. This study examined the recruitment strategies used by "comprehensive" versus "traditional" researchers. Results of an online survey, conducted in 2010, found that "comprehensive" researchers used more, and more diverse and active, recruitment strategies, while "traditional" researchers used fewer and more passive strategies. The authors found that comprehensive researchers were more likely than traditional ones to 1) report...
- How have the perceptions of clinical research among the public and clinical trial participants evolved over time? This article reviews the results of a global online survey of 12,427 individuals (representing 68 countries and including 2,194 clinical trial participants) conducted by the Center for Information and Study on Clinical Research Participation. The respondents understood the importance of clinical research and believed it was safe but had limited understanding of the clinical research...
- While recruiting for the Anti-Amyloid Treatment in Asymptomatic Disease (A4) Trial, investigators compared one-on-one with small-group recruitment sessions. Of the 127 potential participants, most chose small-group sessions. Researchers found that small-group sessions yielded a recruitment rate of 90 percent, while one-on-one sessions led to a 67 percent recruitment rate. In addition, small-group sessions contributed to significantly shorter median time for consent processes (20 versus 60...
- This editorial in Nature discusses how thanking participants in clinical trials is a simple but effective strategy for making them feel like partners in research.
- This article describes how clinical trials participants are using social media to communicate with each other, which can disrupt the usual flow of information.
- This article describes the results of efforts to recruit Asian Americans into longitudinal research on cognitive decline in aging. Recruitment strategies included clinics for assessment of cognitive impairment at the University of California, San Francisco campus and San Francisco’s Chinatown, lectures to local healthcare providers and community members, participation in community events, and publications in mass media. Over 200 Chinese patients were evaluated and 125 participants enrolled...
- This paper reports on the implementation, development, and early findings of the Care Ecosystem, a supportive care intervention for patients with dementia and their caregivers. The objective was to develop and test a scalable model of dementia specialty care that complements primary care with additional caregiver support and education; medication consultation; and support in planning for future medical, financial, and legal decisions. Care is delivered via the phone and web by unlicensed care...
- The purpose of this study was to evaluate older adults' receptiveness to participation in Alzheimer’s-related clinical trials, neuroimaging studies, and psychosocial investigations, and whether that receptiveness changes over time. Patients were surveyed about their willingness to be contacted regarding such research studies twice, 1 year apart. At baseline, most respondents were willing to be contacted; at year 2, 37 percent of respondents voiced different preferences. Researchers concluded...
- Researchers who work with human subjects should address indirect burdens related to research duration, intensity, and invasiveness. This paper introduces the concept of perceived research burden. The authors developed, tested, and validated a new instrument, the Perceived Research Burden Assessment (PeRBA) and found that it has good internal consistency and acceptable validity. Lingler JH, Schmidt KL, Gentry AL, et al. A new measure of research participant burden: Brief report. Journal of...
- This study examines how underrepresented older urban- and rural-dwelling individuals conceptualize participation in studies of cognitive impairment. Nine focus groups about the benefits of research participation were held with older adults from a community-based memory screening study. Results indicate that subjects viewed research participation as a way to address memory concerns and provide a benefit to society. The primary difference arising between rural and urban focus groups was that urban...