Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Research Articles
Displaying 1 - 50 of 199 resources.
- This article identifies barriers and facilitators to Alzheimer’s registry recruitment via mobile device.
- This article examines the use of geographical, location-based information to facilitate the recruitment of Korean Americans.
- This article provides the success rates for different recruitment methods used in a large-scale Alzheimer’s disease risk reduction trial.
- This resource describes the recruitment plan for an upcoming clinical trial that tests the ability of the eRADAR tool to identify patients that may have undiagnosed dementia.
- This article summarizes findings from qualitative interviews with Black and White prospective participants that identified barriers and facilitators to Alzheimer’s research recruitment.
- This article explores how narrative-based recruitment materials for African Americans may be better tailored to enhance recruitment.
- This review article describes the inclusion of underrepresented groups in NIH-funded research Alzheimer’s research.
- This article examines barriers and facilitators to the enrollment of Asian Americans and Pacific Islanders in a dementia research registry.
Accelerating Diversity in Alzheimer’s Disease Research by Partnering With a Community Advisory Board
This article presents a framework in which researchers partner with community advisory boards to accelerate the recruitment of underrepresented groups to Alzheimer’s research.- This resource describes a strategy that leverages family relationships to support the recruitment of African American adults to Alzheimer’s clinical research.
- This resource provides recommendations for how to engage people living with dementia in all stages of clinical research.
- This resource describes barriers to recruiting Latino adults for dementia research during the COVID-19 pandemic, with an emphasis on social isolation.
- This community-engaged study identifies barriers and facilitators to clinical research participation for people living with dementia and their caregivers.
- This study identifies themes in how older African Americans perceive neurovascular clinical trials.
- This review article presents a framework for advance care planning clinical trials that are embedded into existing health care.
- This study identifies characteristics of U.S. adults that are associated with the self-reported likelihood to participate in dementia-prevention clinical trials.
- This resource describes trends in recruitment over a 20-year period of NIH-funded Alzheimer’s clinical trials.
- This article describes how caring behaviors by recruiters impact recruitment in African American and Non-Latinx White older adults.
- This resource describes a support program in which dementia caregivers are matched Dementia Ambassadors trained to educate caregivers and provide appropriate referrals.
- This article examines barriers and facilitators to the clinical trial recruitment of Mexican and Mexican American people at risk for autosomal dominant Alzheimer’s disease.
- This article provides a framework for planning disclosure and consent procedures for research studies involving participants with dementia.
- This resource summarizes key insights from the second annual Latinos & Alzheimer’s Symposium.
- This resource describes the most effective strategies to increase research participation among older African Americans, based on an analysis of peer-review studies.
- This article examines barriers and facilitators to brain donation in a group of Latino adults.
- This resource describes barriers and facilitators of dementia care through the lens of African American caregivers in rural Kentucky.
- This resource explores different ways clinical researchers adapted their recruitment strategies during the COVID-19 pandemic.
- This research article describes how Alzheimer’s disease clinical trial participants view the role of the study partner and how their view informs the selection process.
- This article explores Alzheimer’s disease knowledge and perception within a Native American community.
- This resource explores how academic health centers can more closely engage with their surrounding communities.
- This article describes how considering cultural factors can improve the care and recruitment of people with dementia from underrepresented minority groups.
- In this review article, researchers summarize the importance of caring behaviors in the recruitment of older African Americans with chronic illness.
- In this review article, researchers discuss the ethical aspects to consider when recruiting people with dementia for clinical trials.
- This resource examines how the U.K.-based Join Dementia Research registry strongly bolstered recruitment efforts.
- This article explores why and how to incorporate critical race theory into dementia caregiver recruitment efforts.
- This resource summarizes the results from focus groups with African American older adults in which they discuss their beliefs about participation in clinical research.
- In this article, researchers examine the effectiveness of a community-based strategy to recruit participants for a dementia study.
- This article examines how race and ethnic background impacts sources of recruitment and eligibility for an Alzheimer’s preclinical trial.
- This study tested the effectiveness of different strategies to improve the clinical trial experiences of hospitalized older adults with dementia and their caregivers.
- In this study, researchers examined the perspectives of Asian American and Pacific Islanders regarding their participation in a research recruitment registry.
- This review article from NIA provides strategies to increase awareness and participation of Hispanics/Latinos in AD/ADRD clinical research studies.
- Using research results, Alzheimer's disease scientists developed materials that communicate information to participants about the risk of developing Alzheimer's.
- This article highlights how concentrated community memory screening events can be an effective and efficient recruitment strategy for Alzheimer’s disease research.
- Researchers assessed direct-to-consumer APOE genetic testing usage and their attitudes toward using this information in clinical trial recruitment.
- This article describes how the University of Pittsburgh’s Alzheimer’s Disease Research Center used research participation stories to create messaging for recruitment materials.
- This paper describes the researchers’ experiences in establishing and maintaining a diverse Alzheimer’s Disease Prevention Registry.
- A report that overviews the Washington University School of Medicine Knight ADRC's “African American Participation in Alzheimer Disease Research: Effective Strategies” Workshop on research participation.
- This research examined the effectiveness and differences in using both traditional and social media materials for the recruitment of African American versus non-Hispanic white participants.
- This research article describes the Minority Aging Research Study's brain donation challenges, processes, and successful procurement with older African American adults.
- A research article from the Rush Alzheimer’s Disease Research Center helps researchers learn about their participants and procedures to better advance the science of Alzheimer’s and related dementias in Latinxs.
- Gene Test or Not? is an online decision-making tool designed to help people decide about whether they should have the APOE genetic test.