Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Displaying 1 - 10 of 13 resources.
- Duke Aging Center has a website on the 5Ts framework — a tool to help researchers employ best practices in the inclusion of older adults in their research studies.
- This resource describes trends in recruitment over a 20-year period of NIH-funded Alzheimer’s clinical trials.
Challenges and Opportunities in Conducting Research With Older Adults With Dementia During COVID‐19 and BeyondThis resource explores different ways clinical researchers adapted their recruitment strategies during the COVID-19 pandemic.
Use of Critical Race Theory To Inform the Recruitment of Black/African American Alzheimer’s Disease Caregivers Into Community-Based ResearchThis article explores why and how to incorporate critical race theory into dementia caregiver recruitment efforts.
Recruitment and Retention of Underrepresented Populations in Alzheimer's Disease Research: A Systematic ReviewThis systematic review examined 22 published reports describing recruitment and retention of individuals from underrepresented backgrounds in Alzheimer’s disease research or underrepresented participants’ perspectives regarding participation in such research. The authors concluded that considerable scientific gaps limit the use of prior efforts by scientists to bolster inclusion of members from underrepresented groups. They recommend that future studies on this topic use improved methodological...
Methods and Early Recruitment of a Community-Based Study of Cognitive Impairment Among Mexican Americans and Non-Hispanic Whites: The BASIC-Cognitive StudyThis article describes the methodology and initial recruitment findings for a study that estimated prevalence of cognitive impairment and dementia in Mexican Americans compared with non-Hispanic white people in Nueces County, Texas. The study was aligned with the parent BASIC project, a population-based epidemiological stroke surveillance project, funded by the National Institutes of Health since 1999 to identify differences in stroke prevalence among Mexican Americans and non-Hispanic Whites...
- This online toolbox offers resources from Clinical & Translational Science Awards (CTSA) programs, and their community health partners, to help investigators across the life cycle of their projects.
- This five-page document presents a standardized retention plan for prevention, symptomatic, and observational trials conducted at the Center for Alzheimer Research and Treatment (CART), Brigham and Women’s Hospital and Harvard Medical School. The plan describes strategy and tactics designed to keep patients enrolled in clinical trials, and from discontinuing their participation or dropping out. It covers pre-initiation, study start-up, and study initiation phases. For a copy of the retention...
- This University of Maryland Center for Health Equity website is designed to help build trust between communities and health researchers. It includes fact sheets, articles, reports, and videos.
- This webinar series covers regulatory documentation for clinical trials, informed consent, good clinical practice, and many other topics.