Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Recruit & Retain Participants
Displaying 301 - 310 of 334 resources.
- The Community Action Council at the Boston University Alzheimer's Disease Center (BU ADC) is comprised of leaders from the older adult African-American community. Members are invited to present new research studies, discuss recruitment strategies, report research findings, and provide education or feedback on specific initiatives. Standing members of the council include leaders in the greater Boston African-American community, registry participants, and collaborative partners from Boston...
- At this free 3-hour educational event, presenters from the Boston University Alzheimer's Disease Center highlighted lifestyle factors and brain health, current understanding of Alzheimer’s disease, and current and future research. Following the presentations, participants enjoyed a Mediterranean-diet style meal prepared by local chefs.
- This resource describes the Student Ambassador Program at the Boston University Alzheimer’s Disease Research Center and cites a study that supports the program’s efficacy.
- This web-based project is designed to inform visitors about the need for robust and diverse participation in Alzheimer's research and to allow interested families to share their research interests. The website features a blog with helpful information for people with Alzheimer's and their families and caregivers. Visitors are encouraged to join ACTNOW to receive email updates about Alzheimer's research and community events.
- The Oregon Rural Practice-Based Research Network (ORPRN) is a statewide network of primary care physicians, community partners, and academicians who study the delivery of health care to rural residents and work to reduce rural health disparities. ORPRN works with the Layton Aging and Alzheimer's Disease Center to notify providers and patients about center studies. Research assistants are embedded in the communities to support this work.
- BUILD EXITO is an NIH funded program that provides undergraduate minority students opportunity to work with a research mentor for 2 years.
- This cross-sectional study examined conceptions of dementia in 92 family caregivers for persons with dementia from four ethnic/racial groups: African-American, Anglo European-American, Asian-American, and Latino. In-depth interviews explored participants' ideas about the nature and cause of dementia, known as explanatory models. These explanatory models were categorized as biomedical, folk, or mixed (folk and biomedical). Overall, 54 percent of caregivers held mixed explanatory models. Although...
- This paper details qualitative analysis of interviews with 23 Chinese families and extensive fieldnotes generated by project ethnographers and interviewers in order to identify sociocultural barriers to recruitment that emerged during a 4-year study of dementia caregiving among Chinese families in the Boston area. The analysis identified the following themes: dementia-related changes were construed as a normal part of aging rather than a disease, making it more difficult to identify dementia...
- In this journal article, researchers describe the history, development, and success of the recruitment and screening procedures used by researchers at the UC Davis Alzheimer's Disease Center to facilitate minority enrollment in research. The article discusses the elements of an active community-outreach approach, including hiring and training a bilingual staff, providing transportation to and from study sites, and offering in-home cognitive screening. This approach resulted in a dramatic...
- In an effort to understand cultural attitudes towards brain donation, four Alzheimer's Disease Research Centers conducted focus groups to explore beliefs about and attitudes toward brain donation among African-American, Chinese, Caucasian, and Latino research subjects and their family members. Researchers found that many of the concerns, attitudes, and beliefs about brain donation were similar across the four ethnic groups. Concerns and attitudes fell into three categories: concerns and...