Recruit & Retain Participants

The CARE registry is addressing the gap and disparities in research participation among Asian Americans and Pacific Islanders and encourages participating in research.

Dr. Jonathan Jackson and the Massachusetts Alzheimer’s Disease Research Center give a webinar about direct actions researchers can take to improve diversity and equity in clinical research studies.

In this two-page flyer, a healthy participant who does not have Alzheimer’s disease describes why he decided to participate in Alzheimer’s research.

The Massachusetts Alzheimer’s Disease Research Center offers an eight-page handout and presentation on participating in Alzheimer’s disease clinical research.

This brochure provides an overview of the Alzheimer’s Outreach Program at the University of Pittsburgh Alzheimer’s Disease Research Center, which invites African Americans age 60 or older to participate in research as healthy volunteers.

This video shows a message from the director of the Memory and Aging Project of the Knight Alzheimer’s Disease Research Center at Washington University in St. Louis to research participants and their family during COVID-19.

A one-page flyer from the Wisconsin Alzheimer’s Disease Research Center explains the brain donation process in six simple steps.

The BrightFocus Foundation’s Clinical Trials Finder asks a series of questions to help users find an appropriate Alzheimer’s disease clinical trial. The foundation has also developed a brochure, “Clinical Trials: Your Questions Answered.” BrightFocus funds scientific research worldwide related to Alzheimer’s disease. “Turning Point” is a documentary (2.5 hours, 2017) that provides an inside look at the doctors, scientists and patients who are working to uncover the mysteries of Alzheimer’s...

The authors of this integrative review found that passive, indirect recruitment strategies have been the default approach for enrolling older African Americans into chronic illness-related research studies, including Alzheimer's studies. They recommend the use of proactive, culturally appropriate recruitment approaches, combined with caring recruiter behaviors, that explicitly target older African American adults and that involve direct interactions between prospective participants and the...

For the Alzheimer's Disease Neuroimaging Initiative 3 (ADNI3) trial, 462 new participants were enrolled. Recruitment metrics were recorded on 82,003 unique visitors to the recruitment website and 3,335 calls to study phone numbers. The recruitment sources that produced the most screening and enrollment included online advertisements, local radio and newspaper coverage, and emails and referrals from patient registries. According to the authors, ADNI3 is an example of how a data-driven approach to...