Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Native Hawaiian or Other Pacific Islander
This article examines barriers and facilitators to the enrollment of Asian Americans and Pacific Islanders in a dementia research registry.
In this study, researchers examined the perspectives of Asian American and Pacific Islanders regarding their participation in a research recruitment registry.
The CARE registry is addressing the gap and disparities in research participation among Asian Americans and Pacific Islanders and encourages participating in research.
In this paper, the authors reviewed 44 articles published from January 2000 to December 2011 to identify the experienced or perceived barriers and facilitators to health research participation for major U.S. racial/ethnic minority populations. Shared barriers to participation included mistrust and lack of access to information. Despite different expressions of mistrust, all groups represented in these studies were willing to participate for altruistic reasons embedded in cultural and community...