Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Explain Procedures & Results
Displaying 51 - 60 of 69 resources.
- The Brain Autopsy and Donation Program in the Michigan Brain Bank (MBB) provides individuals and families an opportunity to contribute to research. Participants are eligible if they are enrolled in an affiliated study or were seen by a neurologist at the University of Michigan. Information packets consist of a brochure, a booklet explaining the brain autopsy program, a wallet-sized information card, and refrigerator magnet. When the participant dies, the next-of-kin is sent a pathology report...
- This eight-page brochure from the Wisconsin Alzheimer's Disease Research Center encourages people to volunteer with the center's brain donation program.
- This online web portal from the National Institutes of Health (NIH), includes information for the public on participating in a clinical trial. The portal includes information for parents and family members, basic information on clinical trials, and personal stories from trials participants.
- The All of Us Research Program has many resources, such as videos, social media postings, and websites.
- A one-page handout from the Rush Alzheimer’s Disease Center provides information for participants to share with family members about their participation in the Minority Aging Research Study (MARS) Organ Donation Program. The handout includes information on MARS, which is open to African Americans 65 years old or older; why donation is important; what to do at the time of death; and the process, including transportation, what will be removed, length of the procedure, and the follow-up report that...
- A three-page handout developed for the Latino CORE Study at the Rush Alzheimer’s Disease Center includes 16 frequently asked questions related to donation. The series of questions covers the process and benefits of brain donation for helping scientists learn about changes in the brain, spinal cord, and nerve and muscle tissue in order to better treat and prevent memory loss and dementia in future generations.
- NIA webpages provide tips for healthcare professionals to communicate effectively with older patients.
- This booklet, developed by the National Institute on Aging and the National Institute of Neurological Disorders and Stroke, provides an overview of research on Alzheimer's, vascular dementia, mixed dementia, frontotemporal disorders, Lewy body dementia, and more. The information in this booklet is also available online on the NIA website.
- This short, easy-to-read booklet discusses information on Alzheimer's disease, Alzheimer's genetics, and genes and their role in our health. It also provides evidence-based information on what it means to have a family history of Alzheimer's disease. The information in the booklet is also covered in articles on NIA's website.
- This online article is designed as a guide to support healthcare professionals in managing older patients with cognitive impairment or dementia, suggests care strategies following patients' diagnostic evaluation. The article discusses developing management and patient support plans, tips for communicating with the patient and caregiver, ways to discuss clinical trials, and resources for patients and professionals to learn more.