Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Explain Procedures & Results
Displaying 1 - 10 of 69 resources.
- The University of Pittsburgh has created a toolkit for researchers to help them disclose Alzheimer’s-related biomarker results.
- The Duke University and the University of North Carolina ADRC offers two videos that discuss the participant experience during spinal tap and blood draw procedures.
- The Wisconsin Alzheimer’s Disease Research Center (ADRC) offers videos explaining two biomarker procedures.
- This review article presents a framework for advance care planning clinical trials that are embedded into existing health care.
- This article provides a framework for planning disclosure and consent procedures for research studies involving participants with dementia.
- The Massachusetts Alzheimer’s Disease Research Center has created several guidebooks that aim to educate patients and their families on a variety of topics.
- The Cleveland Alzheimer’s Disease Research Center offers information to educate patients and family members about brain donation.
- These resources from the National Institute on Aging are designed to support Alzheimer’s Disease Research Centers in encouraging brain donation via their social media platforms.
- This video explains how participants in LEADS, an NIA-funded study, can choose whether or not to receive genetic results and what these results mean.
- This decision aid from AGREEDementia helps patients with MCI decide whether or not to undergo brain amyloid imaging.