Explain Procedures & Results

This web page of the Indiana Alzheimer Disease Center answers questions about its brain donation program.

The NIH website, NIH Clinical Trials and You, contains several pages for researchers and trial sites: Improving Visibility of NIH-Supported Clinical Trial Activities and Results : Describes the NIH policy, similar to the FDA “Final Rule” reporting requirement for funded clinical trials: Trials must be registered at ClinicalTrials.gov, and summary results must be submitted no later than 1 year after the primary completion date. Clearly Communicating Research Results Across the Clinical Trials...

This paper describes the design and development of a tablet-based decision support tool to enhance shared decision making and decisional capacity for people with a genetic condition that causes development problems and cognitive impairment who are participating in the informed consent process.

More than 25 plain-language informational brochures in English have been developed to enable and improve communication between clinical research staff and research participants. Most of the brochures are available in an additional 15 languages.

This toolkit provides primary care providers with the tools necessary to recognize normal cognition, diagnose Alzheimer's disease, and identify other cognitive problems requiring specialty referral.

A one-page handout from the Stanford Alzheimer's Disease Research Center explains brain donation in simple steps.

A six-panel brochure from the Stanford Alzheimer's Disease Research Center uses a frequently asked questions format to provide information on brain donation.

A two-sided informational card that provides seven frequently asked questions about brain donation and a testimonial from a Chinese-American study partner.

This report template is used to send cognitive and physical assessment results to cognitively unimpaired research participants in the longitudinal cohort study conducted at the Institute for Memory Impairments and Neurological Disorders (UCI MIND). The report is presented as a letter on UCI MIND letterhead. In narrative and table format, the report presents the following information: 1) goals of the assessment, 2) medical history, 3) report of informant(s), 4) neuropsychological test findings,...

The Movement Disorder Center at the University of California San Diego created a trifold brochure for a brain donation program for Parkinson's disease and related disorders. The brochure provides information on the donation program, who can donate, why to donate, how to enroll, and frequently asked questions.