Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Explain Procedures & Results
Displaying 1 - 10 of 65 resources.
- This article provides a framework for planning disclosure and consent procedures for research studies involving participants with dementia.
- The Massachusetts Alzheimer’s Disease Research Center has created several guidebooks that aim to educate patients and their families on a variety of topics.
- The Cleveland Alzheimer’s Disease Research Center offers information to educate patients and family members about brain donation.
- These resources from the National Institute on Aging are designed to support Alzheimer’s Disease Research Centers in encouraging brain donation via their social media platforms.
- This video explains how participants in LEADS, an NIA-funded study, can choose whether or not to receive genetic results and what these results mean.
- This decision aid from AGREEDementia helps patients with MCI decide whether or not to undergo brain amyloid imaging.
- Using research results, Alzheimer's disease scientists developed materials that communicate information to participants about the risk of developing Alzheimer's.
- Gene Test or Not? is an online decision-making tool designed to help people decide about whether they should have the APOE genetic test.
- This paper describes the development of a standardized approach to disclosing amyloid imaging research results to people with mild cognitive impairment.
- Research participants who intend to donate their brains to a study on Alzheimer’s and related diseases are reliant on family members to fulfill the donation plan. Thus, family members play a pivotal role in increasing brain donation rates, particularly among underrepresented groups. In this study, researchers conducted focus groups with a total of 15 Latino adults who each has a parent age 65 or over. Analysis of the discussions support inclusion of family members during all stages of the...