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Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources

Events

  • The aim of this study was to explore the feasibility of a 45-minute, culturally tailored presentation on Alzheimer's disease for professionals serving the Latino community and Latinos served by community organizations. Five lunch-and-learn events (“Smart Aging” presented in English to professionals and “Envejecimineto Digno” presented in Spanish to served Latinos) were conducted with a total of 40 professionals and 37 served Latinos. Researchers increased the pool of participants by scheduling...
    Communication Strategies Hispanic or Latino Events Research Articles
  • This annual lecture series on healthy brain aging and prevention is presented by the University of California, Davis Alzheimer's Disease Center (ADC).
    Cognitive Health Events Presentations Videos
  • Registry for Remembrance is a community and academic partnership to educate and recruit African Americans for long-term research participation at the Emory Goizueta Alzheimer’s Disease Research Center (ADRC).
    Black or African American Communication Materials Events Registries Websites
  • While recruiting for the Anti-Amyloid Treatment in Asymptomatic Disease (A4) Trial, investigators compared one-on-one with small-group recruitment sessions. Of the 127 potential participants, most chose small-group sessions. Researchers found that small-group sessions yielded a recruitment rate of 90 percent, while one-on-one sessions led to a 67 percent recruitment rate. In addition, small-group sessions contributed to significantly shorter median time for consent processes (20 versus 60...
    Barriers & Facilitators Communication Strategies Events Research Articles
  • An annual event billed as “the largest Chinese dementia-specific educational conference in the nation” and conducted in Chinese (Mandarin) is targeted to concerned community members, healthcare professionals, and families affected by Alzheimer’s disease and related dementia. The forum is cosponsored by the University of California Memory and Aging Center and other organizations. At the 2017 event, held on a Saturday afternoon in the Intel Auditorium in Santa Clara, CA, experts provided updates...
    Asian Caregivers Community Partnerships Underrepresented Communication Materials Events
  • The Hellman Visiting Artist Program is a community outreach initiative from the UCSF Memory and Aging Center to encourage artists to explore their art through an interaction with the topic of dementia and people affected by the disease. Each year, an accomplished artist is invited to visit the center to learn about neurodegenerative disorders like Alzheimer’s disease and frontotemporal dementia and to participate in a creative exchange with researchers, patients, and families. The program...
    Communication Strategies Community Partnerships Events Websites
  • Granny Pearl is a play showing how aging and Alzheimer’s disease can affect African-American families. The story describes the signs of Alzheimer’s as observed by teenage grandchildren and highlights their struggle to cope with changes in their grandmother’s behavior. The importance of seeking medical and spiritual help and maintaining a supportive, loving home environment is stressed. The University of Kentucky Alzheimer’s Disease Center worked with the local faith community to recruit...
    Black or African American Caregivers Community Partnerships Faith-Based Underrepresented Events Videos
  • This toolkit, originally developed by the African American Dementia Outreach Partnership and now distributed by the Balm in Gilead’s National Brain Health Center for African Americans, contains many resources for caregivers and families.
    Black or African American Caregivers Community Partnerships Faith-Based Underrepresented Events Toolkits/Guides
  • This annual symposium is sponsored by the University of Kentucky Sanders-Brown Center on Aging and named for former Center director William Markesbery. The daylong scientific meeting is followed by a half-day community session to which the public is invited free of charge, with breakfast provided. An “Ask the Experts” panel is a popular component of the community session. In 2017, the scientific meeting had more than 160 attendees and the community session drew more than 650 people.
    Events
  • At a one-hour “Aging with Grace” education session, information was presented on “living longer, healthier, and smarter.” Topics covered were social engagement, exercise and physical activity, diet and nutrition, and brain health and normal aging. A full-color, one-page flyer targeted the 2017 class to African Americans (shown in photos on the flyer) and other under-represented populations. The flyer included date, location, and RSVP information.
    Black or African American Cognitive Health Underrepresented Communication Materials Events
  • Lifestyle Enrichment for Alzheimer’s Prevention (LEAP!) is a 6-week program on the basics of Alzheimer’s prevention sponsored by the University of Kansas Alzheimer’s Disease Center and its partners. Program topics include nutrition, physical activity, social-emotional health, sleep, and cognitive engagement. A full-color, one-page flyer was used to promote the 2017 program.
    Cognitive Health Communication Strategies Communication Materials Events
  • This partnership was established to enhance community members’ access to the expertise of the University of Pittsburgh Alzheimer Disease Research Center (Pitt ADRC). The Pitt ADRC Outreach Core partners with local schools and others to raise awareness of Alzheimer’s disease, cognitive aging, and the ADRC in the Pittsburgh area. Funded by the Provost’s Office and Clinical and Translational Science Institute, the partnership’s activities include lectures on brain topics at local schools...
    Cognitive Health Community Partnerships Events
  • "Dance for Health: Active Mind, Active Body" is a Penn Memory Center program to promote healthy living for older adults through exercising, socializing, and healthy eating. The program involves weekly dance sessions and monthly intergenerational activities with students from an area high school. At the beginning and end of each 3-month session, participants are asked to complete a survey to measure well-being and satisfaction with their everyday lives. The program is held at the Ralston Center...
    Black or African American Cognitive Health Community Partnerships Underrepresented Events
  • Penn Memory Center hosts an annual Research Partner Thank You Breakfast for all research participants and their study partners. Leadership, clinicians, and staff of the University of Pennsylvania Alzheimer’s Disease Center and Penn Memory Center attend the breakfast, and a short program provides updates on the studies and programs. The 2017 breakfast was held at the Inn at Penn in Philadelphia.
    Incentives Events
  • The Carl Rinne Lewy Body Dementia Initiative provides support to people with Lewy body dementia and their care partners, educates professionals, and builds public awareness of Lewy body dementia in Michigan. The initiative facilitates three support groups in the Ann Arbor and metro-Detroit areas. The initiative has also created educational materials, expanded materials provided to patients through the cognitive and movement disorders clinics, and increased awareness among primary care providers...
    Caregivers Related Dementias Events
  • The Caregiver Wellness Initiative of the Michigan Alzheimer’s Disease Research Center (MADRC) supports personal well-being, stress resilience, and creative self-expression among community caregivers and adults with mild memory loss. Programs are matched to participants’ current needs and include Wellness Day events, monthly wellness groups, and intensive courses in evidence-based skill-building such as mindfulness-based stress reduction.
    Caregivers Incentives Events
  • This project promotes ideas and advocacy for improving and safeguarding the financial health and well-being of older adults, especially those with cognitive difficulties such as mild cognitive impairment and dementia. Jason Karalwish, MD, introduced the concept of Whealthcare in a 2015 Forbes column titled, "Why Bankers, Financial Analysts and Doctors Need to Start Working Together," and he has testified before Congress on this subject. A 2017 Whealthcare conference was sponsored by the Penn...
    Community Partnerships Events Websites
  • To facilitate recruitment and retention of participants, the Michigan Alzheimer’s Disease Research Center (MADRC) hosts an annual appreciation luncheon for research volunteers and their families, donors, and community partners. MADRC evaluates this activity by soliciting feedback from attendees on their satisfaction with the event (e.g., content, format, and materials) and suggestions for future topics.
    Incentives Communication Materials Events
  • The Michigan Alzheimer’s Disease Research Center (MADRC) has developed partnerships with three regional Alzheimer’s Association chapters. Since 2012, they have co-sponsored and participated in annual community educational programs in the Ann Arbor (MI), Southfield (MI), and Toledo (OH) areas. “Alzheimer’s Research Nights” are held in August each year around the states of Michigan and Ohio. The presentations included research information from the most recent Alzheimer’s Association International...
    Community Partnerships Communication Materials Events Presentations
  • This poster from the Wisconsin Alzheimer’s Disease Research Center (WADRC) encourages participants to refer friends and family members to volunteer to participate in clinical trials. The poster indicates that WADRC is recruiting people with mild cognitive impairment and people ages 45-65 with or without parental history of Alzheimer’s. The poster includes contact information and is distributed at ADRC participant events.
    Communication Materials Events
  • This collaborative initiative among the outreach groups at the Boston University Alzheimer's Disease Center, Massachusetts Alzheimer's Disease Research Center, and the Alzheimer's Association brings local researchers and health professionals into diverse communities to discuss dementia research and care management in an informal environment. Called Science Cafés, these events are highly interactive and discussion based. Topics include brain health, normal versus abnormal memory, memory...
    Barriers & Facilitators Community Partnerships Rural or Urban Events
  • At this free 3-hour educational event, presenters from the Boston University Alzheimer's Disease Center highlighted lifestyle factors and brain health, current understanding of Alzheimer’s disease, and current and future research. Following the presentations, participants enjoyed a Mediterranean-diet style meal prepared by local chefs.
    Community Partnerships Events
  • This free 8-week educational course, offered twice yearly, is targeted to healthy older adult community members interested in learning more about normal aging, abnormal aging (particularly Alzheimer's disease), lifestyle factors, and strategies and skills that can contribute to healthy brain aging. Information about actively recruiting studies is also provided. AgeWISE meets for an hour and a half each week and covers topics using lectures and class discussions. Students are assigned homework to...
    Cognitive Health Communication Strategies Events
  • This 1-day educational program for Spanish-speaking adults and caregivers covers Alzheimer's disease and other topics.
    Caregivers Hispanic or Latino Underrepresented Events
  • These place cards from the Wisconsin Alzheimer's Disease Research Center (WADRC) were used at the tables of participant appreciation events. They include a note of appreciation and contact information.
    Communication Materials Events
  • The UC Irvine Institute for Memory Impairments and Neurological Disorders hosts “Ask the Doc” question-and-answer panels. This series features a UC Irvine ADRC faculty member the first Friday of every month to discuss the latest topics in Alzheimer's research and answer live questions from viewers. Videos are posted on UCI MIND YouTube channel and blog after each live episode.
    Communication Materials Events Websites
  • The annual Southern California Alzheimer’s Disease Research Conference, in partnership with Alzheimer’s Orange County, presents the latest clinical research on Alzheimer’s disease and related dementias. The event reaches a diverse audience of more than 400 clinicians, researchers, students, aging-services providers, and caregivers.
    Communication Materials Events Websites
  • The UCI Institute for Memory Impairments and Neurological Disorders (UCI MIND) hosts summer and holiday appreciation events for research participants and their family members or friends.
    Communication Materials Events
  • This educational series provides evidence-based information on Alzheimer's disease diagnosis, treatment, care, and risk reduction strategies.
    Caregivers Cognitive Health Communication Materials Events Videos
  • This website provides information about the Harvard Aging Brain Study (HABS) Research Participant Appreciation Day in November 2016.
    Biomarkers Brain Donation Incentives Events Videos
  • “Forget Me Not” by Garrett Davis is a play featuring an African American man with early Alzheimer’s disease and his family. In 2017, two presentations of the play were sponsored by the Global Alzheimer’s Research Platform Foundation, the US Against Alzheimer’s Network, and GDavis Productions. The performances were held at the historic Hiburnian Hall in the Roxbury neighborhood of Boston.
    Black or African American Caregivers Community Partnerships Underrepresented Communication Materials Events
  • “Maid’s Door” is a play written by Cheryl Davis that centers around an African-American matriarch Ida Farrell exhibiting signs of Alzheimer’s disease. The drama addresses the impacts of Ida’s changes on her family, including her adult daughter who cares for her. The Sticht Center for Healthy Aging and Alzheimer's Prevention partnered with the North Carolina Black Repertory Company to promote the play and host talk-back sessions after the play. In these sessions, experts talked with the audience...
    Black or African American Caregivers Underrepresented Events