Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Displaying 1 - 10 of 13 resources.
- Resources from the Wisconsin Alzheimer’s Disease Research Center to help inform and recruit American Indian veterans into clinical trials.
- This video explains how participants in LEADS, an NIA-funded study, can choose whether or not to receive genetic results and what these results mean.
- The Vanderbilt Memory and Alzheimer's Center offers information about joining research studies and brain and tissue donation.
- This web page of the Indiana Alzheimer Disease Center answers questions about its brain donation program.
- The homepage of the Indiana Alzheimer Disease Center provides one-page online referral forms that patients or their clinicians can use, respectively, as a first step in volunteering for research on Alzheimer’s disease and other dementias.
- This paper describes the design and development of a tablet-based decision support tool to enhance shared decision making and decisional capacity for people with a genetic condition that causes development problems and cognitive impairment who are participating in the informed consent process.
- The website of the University of Kansas (KU) Alzheimer’s Disease Center includes an iframe, “Currently Enrolling Alzheimer’s Disease Studies,” which lists basic information about currently recruiting studies and gives contact information (phone number, website) for consumers and medical providers if they are interested in following up. Studies are categorized (e.g., observational studies, prevention studies, treatment studies). Each description includes the study’s title, type of study...
- This webinar series covers regulatory documentation for clinical trials, informed consent, good clinical practice, and many other topics.
- The Penn Memory Center uses a Google Form for enlisting into its Brain Health Research Registry people age 60 and older and who have normal memory, mild cognitive impairment, or Alzheimer’s disease. Registry participants are contacted periodically with a list of research studies they can consider joining.
- “Take a Closer Look” is a 12-page guide for participants in the REVEAL-SCAN Study and their study partners. Topics covered are Alzheimer’s disease dementia, amyloid, study steps and procedures including cheek swab and PET scan, and benefits and risks for participants. A one-page flyer on the SCAN study is also available.