Educate & Raise Awareness

Spotlight videos from the University of Pittsburgh Alzheimer’s Disease Research Center highlight research participants’ experiences.

This article describes how the University of Pittsburgh’s Alzheimer’s Disease Research Center used research participation stories to create messaging for recruitment materials.

This Spanish video encourages people to have memory testing if they are having any difficulties remembering.

This video discusses the importance of healthy volunteer participation in Alzheimer’s disease research.

A research article from the Rush Alzheimer’s Disease Research Center helps researchers learn about their participants and procedures to better advance the science of Alzheimer’s and related dementias in Latinxs.

The Mesulam Alzheimer’s Disease Research Center offers a monthly email newsletter that includes information and resources on dementia.

The authors developed a document for use with potential study participants that describes the process of amyloid imaging and the implications of amyloid imaging results.

This paper outlines a framework created by the Alzheimer’s Prevention Initiative Genetic Testing, Counseling, and Disclosure Committee for large-scale disclosure of APOE results to study participants.

A video from the University of California, San Francisco, explains why diversity in research is important, and steps researchers can take to increase diversity in their studies.

This webpage, from Johns Hopkins Alzheimer's Disease Research Center, helps educate readers about why clinical research studies are important, who can participate in research, and the differences between observational and intervention studies.

This infographic helps research participants learn more about the differences between clinical trials and observational studies.

With printable materials and videos, this dementia toolkit is designed to help students, health care professionals, families, and members of the community understand more about dementia.

In this one-page flyer, a research coordinator answers common research participant questions.

This booklet for research participants, patients, caregivers, and families provides information on brain health and Alzheimer's disease.

This webpage offers answers to commonly asked questions about brain and brain tissue donation.

A collection of videos about Alzheimer’s disease and clinical trials, including topics on clinical trials awareness and recruiting.

This trailer gives viewers an overview of the documentary, Too Soon to Forget: The Journey of Younger Onset Alzheimer’s Disease, which tells the story of nine families who experienced early-onset Alzheimer’s disease.

This webinar covers the current drug therapies available to help treat Alzheimer’s disease, as well as current and future drug research studies.

This booklet helps readers understand more about Alzheimer’s disease and the impact on Native American people.

The BrainTalk series are videos as well as slides presentations on a variety of topics ranging from research participation to exercise.

This three-page PDF describes why Lewy body dementia clinical research is important, explains the development and stages of trials, and encourages people to consider joining a trial.

This is a one-page recruitment flyer encouraging volunteers with Alzheimer’s disease, Parkinson’s disease, Lewy body disease, or mild cognitive impairment to join a clinical trial.

This video describes the process of joining a clinical trial and the impact it can make on research.

Past and present Alzheimer’s Disease Research Center patients and family members share their experiences in participating in research studies.

The Massachusetts Alzheimer’s Disease Research Center offers an eight-page guide for primary caregivers of people with Alzheimer’s disease.

This Spanish language video from the Shiley-Marcos Alzheimer’s Disease Research Center covers the symptoms of Alzheimer’s disease and the need to include the Latino community in clinical research.

To test an intervention for increasing Alzheimer’s disease literacy among African Americans, the researchers enrolled 193 African American community-dwelling adults using culturally tailored education and messaging.

A one-page flyer from the Wisconsin Alzheimer’s Disease Research Center explains the brain donation process in six simple steps.

These resources, posted by the UCSF Memory and Aging Center, include FAQs and guidance for older adults, social distancing compliant activities, tips for dementia caregivers, and services to help access food, incontinence supplies, and pharmacy needs.

This customizable flyer is designed for community agencies to share critical information about COVID-19, including why older adults and people with chronic conditions are at higher risk, symptoms of COVID-19, what to do if someone gets sick, and ways to spot and avoid COVID-19 scams. Designed to be easy to distribute, for example during wellness checks, the two-sided flyer is also customizable so agencies can add their logo and contact information to the back page.

This webpage provides guidance for caregiving during COVID-19. Information includes facts about COVID-19, handwashing and sanitizing, cleaning the home, self-care, social distancing, home engagement opportunities and managing medical care. A similar resource was posted by several Alzheimer’s Disease Research Centers (ADRCs) to communicate with research participants and the ADRC’s community members.

The Shiley-Marcos Alzheimer's Disease Research Center published a list of tips, resources, and services for adults with dementia and their families during the COVID-19 pandemic. Topics include caregiving, mental health considerations, communication tips, community and emergency resources, and activity ideas. Some resources are available in English and Spanish. For Spanish speakers, resources include a guide to caregiving during COVID-19 and general protocols to avoid spreading the disease, as...

This toolkit, developed by the Rush Alzheimer’s Disease Center, is designed for dementia support group facilitators who want to learn and grow in their practice. The Toolkit Project was developed based on insights gained from a dementia support group for adults with younger-onset Alzheimer’s disease and their caregivers. The toolkit includes information about support group facilitator skills, common themes expressed by people living with dementia and their family members, topics for encouraging...

This special COVID-19 issue of the "Dementia Connection" newsletter compiled by Mayo Clinic Alzheimer’s Disease Research Center provides links to helpful online resources including tips for caregiving, self-protection, and remaining active, healthy, and safe while staying at home during the COVID-19 pandemic.

This article developed by the University of Pennsylvania’s Memory Center offers guidelines to Alzheimer’s and dementia caregivers for managing daily care at home and coping with anxiety during the COVID-19 pandemic. The article includes general tips and anxiety-busting tools, advice on medical care, activity ideas for meaningful engagement, and additional information on COVID-19 and Alzheimer’s disease.

The BrightFocus Foundation’s Clinical Trials Finder asks a series of questions to help users find an appropriate Alzheimer’s disease clinical trial. The foundation has also developed a brochure, “Clinical Trials: Your Questions Answered.” BrightFocus funds scientific research worldwide related to Alzheimer’s disease. “Turning Point” is a documentary (2.5 hours, 2017) that provides an inside look at the doctors, scientists and patients who are working to uncover the mysteries of Alzheimer’s...

Research participants who intend to donate their brains to a study on Alzheimer’s and related diseases are reliant on family members to fulfill the donation plan. Thus, family members play a pivotal role in increasing brain donation rates, particularly among underrepresented groups. In this study, researchers conducted focus groups with a total of 15 Latino adults who each has a parent age 65 or over. Analysis of the discussions support inclusion of family members during all stages of the...

Alzheimer’s disease and related dementias are described in infographics produced by the Michigan Alzheimer’s Disease Research Center (MADRC).

“Conversando con los Cuidadores” is a series of nine short videos that offer practical advice from real people who care for family members with dementia.

The aim of this study was to explore the feasibility of a 45-minute, culturally tailored presentation on Alzheimer's disease for professionals serving the Latino community and Latinos served by community organizations. Five lunch-and-learn events (“Smart Aging” presented in English to professionals and “Envejecimineto Digno” presented in Spanish to served Latinos) were conducted with a total of 40 professionals and 37 served Latinos. Researchers increased the pool of participants by scheduling...

To help increase participation of Hispanic older adults in dementia research, this trial aimed to assess the effectiveness of a culturally tailored recruitment educational strategy for older Hispanic adults. Researchers held six one-session tailored dementia education events at trusted community senior centers. The participants were given contact information to complete if they were interested in dementia research and enrollment into the National Alzheimer’s Coordination Center was tracked...

This web page lists all trials of the Mount Sinai Alzheimer's Disease Research Center in New York City, both those recruiting and those no longer recruiting.

The University of Pittsburgh Alzheimer's Disease Research Center (ADRC) publishes a biannual, 12-page publication for a lay audience.

The Michigan Alzheimer’s Disease Research Center (MADRC) provides an online biographical listing of staff available for public presentations.

This web page of the Indiana Alzheimer Disease Center answers questions about its brain donation program.

This annual lecture series on healthy brain aging and prevention is presented by the University of California, Davis Alzheimer's Disease Center (ADC).

Dimensions is a twice-a-year publication of the University of Washington Alzheimer’s Disease Research Center (ADRC).

This audiovisual novella presents the story of a Mexican family that is struggling to figure out what is wrong when their patriarch starts to forget things.

In collaboration with Nuestra Casa, a local community health advocacy organization, the Stanford Alzheimer’s Disease Research Center (ADRC) designed and successfully implemented a dementia awareness campaign in East Palo Alto, CA. The largely Latino community near Stanford had little knowledge of dementia and its consequences. This article describes the community-based participatory research model that was used to create materials and training for 20 promotoras (community outreach workers). The...

This community engagement program at the University of Florida bridges the gap between health care and health research by providing health education, health screenings, and wellness resources. It also links participants with clinical studies.