Disclosing and Sharing Results

The University of Pittsburgh has created a toolkit for researchers to help them disclose Alzheimer’s-related biomarker results.

This article provides a framework for planning disclosure and consent procedures for research studies involving participants with dementia.

This video explains how participants in LEADS, an NIA-funded study, can choose whether or not to receive genetic results and what these results mean.

Using research results, Alzheimer's disease scientists developed materials that communicate information to participants about the risk of developing Alzheimer's.

Researchers assessed direct-to-consumer APOE genetic testing usage and their attitudes toward using this information in clinical trial recruitment.

Gene Test or Not? is an online decision-making tool designed to help people decide about whether they should have the APOE genetic test.

This paper describes the development of a standardized approach to disclosing amyloid imaging research results to people with mild cognitive impairment.

The authors developed a document for use with potential study participants that describes the process of amyloid imaging and the implications of amyloid imaging results.

This paper outlines a framework created by the Alzheimer’s Prevention Initiative Genetic Testing, Counseling, and Disclosure Committee for large-scale disclosure of APOE results to study participants.

This online toolbox offers resources from Clinical & Translational Science Awards (CTSA) programs, and their community health partners, to help investigators across the life cycle of their projects.