Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Community Partnerships
Displaying 31 - 40 of 54 resources.
- The sponsors of the PEARLS (Program to Encourage Active, Rewarding Lives) study, a home-based depression-care management program for elders, partnered with three social service organizations in the Seattle area to identify hard-to-reach populations, barriers to reaching them, and strategies for improving recruitment and retention. Based on semistructured interviews with study staff and former PEARLS participants, several themes emerged, including trust, cultural appropriateness, meet them where...
- The authors describe strategies used to recruit older adults to a clinical trial of a behavioral intervention to improve adherence to taking antihypertensive medication. Four themes are explored: accessing an appropriate population, communication and trust-building, providing comfort and security, and expressing gratitude. Recruitment success was linked to cultivating relationships with community-based organizations, face-to-face contact with potential study participants, and providing a service...
- This articles describes the barriers and challenges faced in recruiting nursing home residents to a pilot study and proposes a new approach to achieve more successful recruitment of these types of participants. A carefully planned recruitment strategy must consider barriers such as mistrust and disruption to routines, the authors concluded. Researchers must also strive for connections that create positive relationships with care homes. Tzouvara V, Papadopoulos C, Randhawa G. Lessons learned from...
- An annual event billed as “the largest Chinese dementia-specific educational conference in the nation” and conducted in Chinese (Mandarin) is targeted to concerned community members, healthcare professionals, and families affected by Alzheimer’s disease and related dementia. The forum is cosponsored by the University of California Memory and Aging Center and other organizations. At the 2017 event, held on a Saturday afternoon in the Intel Auditorium in Santa Clara, CA, experts provided updates...
- The Chinese Outreach Program at the UCSF Memory and Aging Center is targeted to the Chinese-American community in the Bay Area in order to improve knowledge about dementia in the community and to promote enrollment of Chinese Americans into studies conducted by the Alzheimer's Disease Research Center. The center maintains a 14-page document on its internal wiki called MACipedia that outlines Chinese outreach initiatives and procedures. The center has also produced a two-page flyer for use at...
- The Hellman Visiting Artist Program is a community outreach initiative from the UCSF Memory and Aging Center to encourage artists to explore their art through an interaction with the topic of dementia and people affected by the disease. Each year, an accomplished artist is invited to visit the center to learn about neurodegenerative disorders like Alzheimer’s disease and frontotemporal dementia and to participate in a creative exchange with researchers, patients, and families. The program...
- This toolkit, originally developed by the African American Dementia Outreach Partnership and now distributed by the Balm in Gilead’s National Brain Health Center for African Americans, contains many resources for caregivers and families.
- This 72-page manual shares information learned during 4 years of a national grant to build awareness and support related to Alzheimer's disease in the Lexington/Bluegrass area in Kentucky.
- The African American Advisory Board counsels the research team at the Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis on cultural sensitivity and appropriate outreach strategies for encouraging greater African American participation in memory and aging studies. The board is made up of influential members of the St. Louis African American community and was established in 2000.
- This partnership was established to enhance community members’ access to the expertise of the University of Pittsburgh Alzheimer Disease Research Center (Pitt ADRC). The Pitt ADRC Outreach Core partners with local schools and others to raise awareness of Alzheimer’s disease, cognitive aging, and the ADRC in the Pittsburgh area. Funded by the Provost’s Office and Clinical and Translational Science Institute, the partnership’s activities include lectures on brain topics at local schools...