Community Partnerships

This resource provides recommendations for how to engage people living with dementia in all stages of clinical research.

Rutgers has created a toolkit for community research based on input from community-based organizations.

This resource explores how academic health centers can more closely engage with their surrounding communities.

This book club hosted by the Wisconsin Alzheimer’s Disease Research Center engages community members, research participants, and study partners in discussions about Alzheimer’s disease.

This customizable flyer is designed for community agencies to share critical information about COVID-19, including why older adults and people with chronic conditions are at higher risk, symptoms of COVID-19, what to do if someone gets sick, and ways to spot and avoid COVID-19 scams. Designed to be easy to distribute, for example during wellness checks, the two-sided flyer is also customizable so agencies can add their logo and contact information to the back page.

This toolkit, developed by the Rush Alzheimer’s Disease Center, is designed for dementia support group facilitators who want to learn and grow in their practice. The Toolkit Project was developed based on insights gained from a dementia support group for adults with younger-onset Alzheimer’s disease and their caregivers. The toolkit includes information about support group facilitator skills, common themes expressed by people living with dementia and their family members, topics for encouraging...

The Patient-Centered Outcomes Research Institute (PCORI) created this repository of more than 150 tools and resources for use with patient-centered, stakeholder-engaged research. Repository items are developed by recipients of PCORI research grants, and the Institute makes them publicly available to encourage the use of these engagement practices and methodologies within the broader healthcare research community. The database can be searched by keywords or by criteria in the following categories...

In collaboration with Nuestra Casa, a local community health advocacy organization, the Stanford Alzheimer’s Disease Research Center (ADRC) designed and successfully implemented a dementia awareness campaign in East Palo Alto, CA. The largely Latino community near Stanford had little knowledge of dementia and its consequences. This article describes the community-based participatory research model that was used to create materials and training for 20 promotoras (community outreach workers). The...

To address the challenges of recruiting patients into early-phase trials of mild cognitive impairment and Alzheimer’s disease, a memory clinic was implemented within the clinical trials unit of a biopharmaceutical company.

This online tool helps patient groups and clinical research sponsors identify high-value opportunities for patient engagement.