Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Communication Materials
Displaying 101 - 150 of 170 resources.
- This trifold brochure from the Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis is part of a group of materials for the Memory & Aging Project (MAP) research study. This particular brochure is targeted to the African American community in St. Louis. It covers some basics about memory loss and aging, warning signs of Alzheimer’s, and specific risk factors for African Americans. It also shares information about the Knight ADRC and its dedication to...
- "Preventing Dementia in Indigenous Peoples by Aging Well: Advice from Older Indigenous Peoples" is a fact sheet that combines a summary of advice from Alzheimer's societies, older indigenous adults, people diagnosed with dementia, caregivers, knowledge keepers, and health care providers w. The fact sheet includes a list of resources and a blank space for local organizations to add their own contact information. It is designed in 8 pages so that it can be printed both on regular printer paper or...
- A colorful one-page flyer invites “four friends over 60” to visit the University of Pittsburgh Alzheimer’s Disease Research Center for 4 hours per year to fight Alzheimer’s disease. The flyer describes the components of a comprehensive evaluation participants will receive, which includes personalized feedback. A contact name and phone number are provided.
- A one-page flyer invites potential volunteers to learn more about participating in a federally funded research study. It lists the free clinical services they will receive, perks such as free parking, and a promise of confidentiality. A contact name and phone number are given.
- The Memory & Aging Project (MAP) at Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis was started in 1979 and studies intellectual functioning in persons as they age. The ADRC has a number of materials promoting this study, including a full-color folded brochure that provides an introduction to MAP and the Knight ADRC and covers what to consider before volunteering. The brochure also includes an infographic about the ADRC and contact information.
- This one-page flyer, targeted to prospective African-American participants, describes the importance of Alzheimer’s research personally, for loved ones, and for the community.
- The Penn Memory Center conducted the Anti-Amyloid Treatment in Asymptomatic Alzheimer's (A4) Study. Although not currently recruiting, this 4-minute radio interview discusses the center's active recruitment of African-American participants.
- The Penn Memory Center has created Web pages describing its open studies. Each page provides a link to a printable PDF with the same information: Aging Brain Cohort (ABC) Study Alzheimer’s Disease Neuroimaging Initiative 3 Study Longitudinal Early-onset Alzheimer’s Disease Study (LEADS) Medial Temporal Lobe (MTL) Study The PEGASUS Study (PDF 65.7 KB) REVEAL-SCAN Study Time Out Respite Care Research Study
- This one-page, four-color handout includes brief information on the Mediterranean Diet and physical exercise. Photographs feature African-American couples.
- “Take a Closer Look” is a 12-page guide for participants in the REVEAL-SCAN Study and their study partners. Topics covered are Alzheimer’s disease dementia, amyloid, study steps and procedures including cheek swab and PET scan, and benefits and risks for participants. A one-page flyer on the SCAN study is also available.
- Penn Memory Center researchers used a multi-phase, theory-driven research process to craft and test advertising messages that would motivate African-American and non-Hispanic white adults to accompany their parent, step-parent, or parent-in-law to see a specialist for a memory evaluation. Staff members created a two-page handout that features images of several full-color ads and encourages organizations that provide services to older adults to make use of them, free of charge. Penn Memory Center...
- This one-page, full-color flyer describes the importance of brain autopsy to research and the special need for brain donations from people who are African American. Several bullet points summarize the donation process, and a paragraph answers the question, “Does donation fit in with religious beliefs?” Contact information is provided.
- To facilitate recruitment and retention of participants, the Michigan Alzheimer’s Disease Research Center (MADRC) hosts an annual appreciation luncheon for research volunteers and their families, donors, and community partners. MADRC evaluates this activity by soliciting feedback from attendees on their satisfaction with the event (e.g., content, format, and materials) and suggestions for future topics.
- Registry participants receive an information packet including contact information for Michigan Alzheimer’s Disease Research Center (MADRC) staff, brochures on relevant clinical services and education/wellness programs, and a list of currently recruiting studies. Appreciation for volunteers’ commitment is shown through birthday cards, holiday cards, and an annual gift to promote brain/physical health, such as a pedometer.
- The Brain Autopsy and Donation Program in the Michigan Brain Bank (MBB) provides individuals and families an opportunity to contribute to research. Participants are eligible if they are enrolled in an affiliated study or were seen by a neurologist at the University of Michigan. Information packets consist of a brochure, a booklet explaining the brain autopsy program, a wallet-sized information card, and refrigerator magnet. When the participant dies, the next-of-kin is sent a pathology report...
- This eight-page brochure from the Wisconsin Alzheimer's Disease Research Center encourages people to volunteer with the center's brain donation program.
- The Michigan Alzheimer’s Disease Research Center (MADRC) has developed partnerships with three regional Alzheimer’s Association chapters. Since 2012, they have co-sponsored and participated in annual community educational programs in the Ann Arbor (MI), Southfield (MI), and Toledo (OH) areas. “Alzheimer’s Research Nights” are held in August each year around the states of Michigan and Ohio. The presentations included research information from the most recent Alzheimer’s Association International...
- The Michigan Alzheimer’s Disease Research Center’s newsletter facilitates recruitment and retention while providing Alzheimer’s disease education. It is published biannually and mailed to all participants in the center’s research studies, with an electronic version sent to community and academic partners. Each issue highlights actively recruiting studies, research findings from center studies, profiles of center staff and research participants, education on emerging topics in the field, and...
- The "Headlines" newsletter from the Wisconsin Alzheimer’s Disease Research Center (WADRC) includes news, Center highlights, information on upcoming events, and descriptions of select open studies. The newsletter was launched in 2014 and is now available as an e-newsletter about twice a month.
- This poster from the Wisconsin Alzheimer’s Disease Research Center (WADRC) encourages participants to refer friends and family members to volunteer to participate in clinical trials. The poster indicates that WADRC is recruiting people with mild cognitive impairment and people ages 45-65 with or without parental history of Alzheimer’s. The poster includes contact information and is distributed at ADRC participant events.
- The "Vital News" newsletter is a biannual publication of the Wake Forest School of Medicine Alzheimer’s Disease Research Center that provides information to current, former, and potential study participants. It is mailed hard-copy to more than 16,000 recipients.
- The All of Us Research Program has many resources, such as videos, social media postings, and websites.
- A six-panel Spanish-language brochure from the Rush Alzheimer’s Disease Center provides reasons for participating in research, benefits, and how to get more information. It includes an infographic of ways for people to protect their brain health, including tips for healthy eating, exercise, and participating in activities.
- This health information article contains information on participating in Alzheimer's disease research and why it matters. It covers the benefits and risks of participating in an Alzheimer's or related dementias clinical trial, questions to ask, safety, and tips for finding trials.
- This tip sheet includes information on advance care planning for older adults, including developing a will, advance directive, healthcare power of attorney, and more. It also includes resources for older adults to learn more. The information in this tip sheet is also available online on the NIA website.
- A one-page handout from the Rush Alzheimer’s Disease Center provides information for participants to share with family members about their participation in the Minority Aging Research Study (MARS) Organ Donation Program. The handout includes information on MARS, which is open to African Americans 65 years old or older; why donation is important; what to do at the time of death; and the process, including transportation, what will be removed, length of the procedure, and the follow-up report that...
- A three-page handout developed for the Latino CORE Study at the Rush Alzheimer’s Disease Center includes 16 frequently asked questions related to donation. The series of questions covers the process and benefits of brain donation for helping scientists learn about changes in the brain, spinal cord, and nerve and muscle tissue in order to better treat and prevent memory loss and dementia in future generations.
- This popular fact sheet, published by the National Institute on Aging (NIA), discusses the signs and symptoms, causes, diagnosis, and treatment of Alzheimer's disease, as well as changes in the brain. The fact sheet is available in print in English and online in English and Spanish.
- This AgePage brochure, available in English and Spanish, discusses the importance of advance care planning for older adults, including identifying and gathering important papers, step-by-step instructions on getting your affairs in order, and resources to learn more. The information in the brochure is also available online on the NIA website in English and Spanish.
- This booklet is designed to help older adults make the most of their medical appointments, develop effective communication with their doctors, cultivate communication strategies to help them discuss sensitive subjects with their doctors, and more. It also includes medications and appointment planning worksheets. The information in this booklet is also available online on the NIA website.
- NIA webpages provide tips for healthcare professionals to communicate effectively with older patients.
- This booklet, developed by the National Institute on Aging and the National Institute of Neurological Disorders and Stroke, provides an overview of research on Alzheimer's, vascular dementia, mixed dementia, frontotemporal disorders, Lewy body dementia, and more. The information in this booklet is also available online on the NIA website.
- This short, easy-to-read booklet discusses Alzheimer's disease basics, causes, diagnosis, treatment, caregiving, and when to see a doctor. The information in the booklet is also covered in articles on NIA's website.
- This short, easy-to-read booklet discusses information on Alzheimer's disease, Alzheimer's genetics, and genes and their role in our health. It also provides evidence-based information on what it means to have a family history of Alzheimer's disease. The information in the booklet is also covered in articles on NIA's website.
- This short, easy-to-read booklet explores the differences between normal forgetfulness and more serious memory loss, the basic facts about Alzheimer's disease and dementia, and how to get help if one notices memory problems. The information in the booklet is also covered in articles on NIA's website.
- This webpage from the National Institute on Aging explores participation in clinical trials in an easy-to-read, straightforward manner. The page covers general information about participation in clinical trials, terms to know, things to consider before participation, benefits, risks and safety considerations, diversity in clinical trials, registries and matching services, and more.
- A checklist written in Spanish that provides important steps to take after an Alzheimer's Diagnosis.
- This online article is designed as a guide to support healthcare professionals in managing older patients with cognitive impairment or dementia, suggests care strategies following patients' diagnostic evaluation. The article discusses developing management and patient support plans, tips for communicating with the patient and caregiver, ways to discuss clinical trials, and resources for patients and professionals to learn more.
- This fact sheet contains information for research participants about biomarkers used in Alzheimer's and dementia detection and research, including brain imaging, cerebrospinal fluid, and blood and genetic tests.
- This booklet from the National Institute on Aging and the National Institute of Neurological Disorders and Stroke, provides an overview of frontotemporal dementia, primary progressive aphasia, and related movement disorders. It gives information about the disorders' symptoms, causes, diagnosis, treatment, and care. The information in this booklet is also available online on the NIA website.
- This booklet provides basic information about Lewy body dementia, including diagnosis, treatment, caregiving, and information for people living with Lewy body dementia.
- These online resources from the National Institute on Aging were designed to support Alzheimer's Disease Centers in encouraging brain donation among research participants. The template includes frequently asked questions about brain donation and communication tips.
- This comprehensive evaluation summary is provided to each longitudinal cohort participant after an annual visit.
- "Steven Steps to Managing Your Memory: What's Normal, What's Not, and What to Do About It" was written by core directors at the Boston University Alzheimer's Disease Center to help older adults understand normal age-related memory changes and when to see a doctor. It presents information on dementia, mild cognitive impairment, and Alzheimer's disease, including current treatments and what the research shows for prevention and brain health. The book also suggests memory aids and provides...
- The CNN news story, "History of mistrust complicates study of dementia in African-Americans," features study participants at UC Davis Alzheimer's Disease Center and Rush Alzheimer's Disease Center in Chicago considering brain donation for family members with Alzheimer's. The participants address issues of distrust of research due to past abuses of African Americans. The article also includes a short video on "What Is Dementia?"
- This issue of the UC Davis Alzheimer's Disease Center newsletter, produced in both English and Spanish, features articles on "Ethnic disparities in brain health and dementia" and a profile of an African-American family participating in the ADC's brain donation program. These plus other articles support a call to action for individuals to join research studies at the center.
- This website is designed to help recruit and retain racial/ethnic minorities into therapeutic clinical trials to reduce cancer-related health disparities.
- A bookmark from the Wisconsin Alzheimer’s Disease Research Center (WADRC), printed on both sides, includes a note of appreciation, some statistics about the Wisconsin Brain Donor Program, and multiple methods of contact (phone, Brain Bank email, and 24-hour page number).
- Published twice a year, this newsletter features updates on research, resources, and news generated by the Shiley-Marcos Alzheimer's Disease Research Center. The newsletter is written to be accessible to a lay audience, and features stories by study participants and their families, research updates, and information on trials that are enrolling participants. All study participants are given a printed copy of the newsletter.
- This handout, developed by a caregivers’ support group, provides a list of ideas for family and friends wishing to support caregivers and help relieve their stress. The suggestions include providing meals, visiting with the person with dementia, sustaining friendships with caregivers, scheduling a family meeting to discuss short- and long-term care, and more.