Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Brain Donation
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Displaying 11 - 20 of 36 resources.
- This article describes the information-gathering process that led to the creation of two educational resources designed specifically for the Hispanic/Latino population, The Precious Gift Brain Donation Brochure and the Brain Donation Steps Handout . In a review of the National Alzheimer’s Coordination Center’s (NACC) database for June 2005–May 2016, the authors found that people who self-identify as Hispanic/Latino made up only 8 percent of participants enrolled and 3 percent of the deceased...
- This webpage of the Indiana Alzheimer Disease Center answers questions about its brain donation program.
- "Why My Grandmother Carried a Plastic Brain in Her Purse" was published April 2018 in The Atlantic . It features Marjorie Pearlson, a 93-year-old woman who is passionate about her decision to donate her brain to science. Ms. Pearlson plans to donate her brain to the University of Miami’s Brain Endowment Bank, one of six brain and tissue biorepositories funded by NIH’s NeuroBioBank .
- "Leaving Your Brain to Science: Don’t Let Myths Dissuade You" describes the Brain Donor Project (which supports the NIH NeuroBioBank ) and presents basic facts about brain donation. The article was published in the October 2018 issue of National Geographic .
- A two-sided informational card that provides seven frequently asked questions about brain donation and a testimonial from a Chinese-American study partner.
- Public-directed page of the NIH NeuroBioBank providing information on donation and answering frequently asked questions.
- This trifold brochure created by the Johns Hopkins Alzheimer’s Disease Research Center provides information on the Memory and Aging Study Brain Donation Program and the importance of donation. The brochure includes information on making the decision, joining the program, and making arrangements. It also features participant profiles and provides contact information.
- This study qualitatively examined perceptions of advanced stage lung cancer patients participating in a lung cancer Rapid Tissue Donation Program and their next of kin and physicians. Through interviews, the authors found that the majority of patients joined the program to give back to research. Patients also discussed their decision to participate with family members and desire for family to receive information about the use of the tissue after their death. All participating next of kin were...
- This handout, created by Dementia Australia, provides information to help people make a decision about donating their brain or a loved one’s brain for research and how to go about it. The handout features a series of frequently asked questions covering what brain donation is, how to become a donor, and the process of donation.
- The Neurodegenerative Disease Brain Bank at the UCSF Memory and Aging Center was established in 2008 and serves as a repository for nervous system tissue donated for research purposes. This webpage explains the benefits of brain donation, who is eligible, and how the tissue is used.
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