Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Black or African American
Displaying 51 - 88 of 88 resources.
- This study evaluated the ability of a registry of research volunteers to retain African-American older adults and to explore the demographic and health factors associated with retention. Researchers analyzed data for 1,730 adults enrolled in the Healthier Black Elders Center (HBEC) research registry. They found an increased likelihood of retention was associated with employment, being referred to research studies, a higher number of medical conditions, and more follow-up contacts. A decreased...
- A clinical trial evaluated the effectiveness of a church-based educational intervention aimed at improving African Americans' participation in clinical trials. A total of 221 subjects age 50 and older were recruited from six predominantly African American churches in the Atlanta area. Some subjects attended three educational sessions, while others (the controls) completed questionnaires. Subjects' intention to join a clinical trial was measured at baseline and after 3 and 6 months. Researchers...
- This study examined the factors that influence participation in clinical trials by older African Americans, including social support, transportation access, and physical impediments. Researchers surveyed 221 participants who were recruited from local African American churches. They found that increased intent to join a trial was associated with greater transportation mobility, social ability, and daily living ability. Among adults age 65 and older, those with lower levels of support during a...
- The sponsors of the PEARLS (Program to Encourage Active, Rewarding Lives) study, a home-based depression-care management program for elders, partnered with three social service organizations in the Seattle area to identify hard-to-reach populations, barriers to reaching them, and strategies for improving recruitment and retention. Based on semistructured interviews with study staff and former PEARLS participants, several themes emerged, including trust, cultural appropriateness, meet them where...
- This annual publication includes profiles of study participants, study partners, and research professionals; articles about topics related to Alzheimer's such as healthy aging and elder abuse; feature stories on current clinical trials; staff news; articles on the importance of African-American participation in research and brain donation; and a list of recent financial supporters of the Center's Alzheimer's research. InSight was a newsletter until 2016, when it was reformatted as a magazine.
- This toolkit, originally developed by the African American Dementia Outreach Partnership and now distributed by the Balm in Gilead’s National Brain Health Center for African Americans, contains many resources for caregivers and families.
- This 72-page manual shares information learned during 4 years of a national grant to build awareness and support related to Alzheimer's disease in the Lexington/Bluegrass area in Kentucky.
- At a one-hour “Aging with Grace” education session, information was presented on “living longer, healthier, and smarter.” Topics covered were social engagement, exercise and physical activity, diet and nutrition, and brain health and normal aging. A full-color, one-page flyer targeted the 2017 class to African Americans (shown in photos on the flyer) and other under-represented populations. The flyer included date, location, and RSVP information.
- The Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis held a workshop on issues surrounding recruitment of African-American participants into Alzheimer’s disease (AD) research studies. The workshop, titled “African American Participation in AD Research: Effective Strategies Workshop,” was held at Washington University on October 10, 2018.
- The African American Advisory Board counsels the research team at the Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis on cultural sensitivity and appropriate outreach strategies for encouraging greater African American participation in memory and aging studies. The board is made up of influential members of the St. Louis African American community and was established in 2000.
- This trifold brochure from the Knight Alzheimer’s Disease Research Center (Knight ADRC) at Washington University in St. Louis is part of a group of materials for the Memory & Aging Project (MAP) research study. This particular brochure is targeted to the African American community in St. Louis. It covers some basics about memory loss and aging, warning signs of Alzheimer’s, and specific risk factors for African Americans. It also shares information about the Knight ADRC and its dedication to...
- This short news video from St. Louis, MO, focuses on the important role volunteers play in Alzheimer's research.
- This one-page flyer, targeted to prospective African-American participants, describes the importance of Alzheimer’s research personally, for loved ones, and for the community.
- The Penn Memory Center conducted the Anti-Amyloid Treatment in Asymptomatic Alzheimer's (A4) Study. Although not currently recruiting, this 4-minute radio interview discusses the center's active recruitment of African-American participants.
- This one-page, four-color handout includes brief information on the Mediterranean Diet and physical exercise. Photographs feature African-American couples.
- Penn Memory Center researchers used a multi-phase, theory-driven research process to craft and test advertising messages that would motivate African-American and non-Hispanic white adults to accompany their parent, step-parent, or parent-in-law to see a specialist for a memory evaluation. Staff members created a two-page handout that features images of several full-color ads and encourages organizations that provide services to older adults to make use of them, free of charge. Penn Memory Center...
- This one-page, full-color flyer describes the importance of brain autopsy to research and the special need for brain donations from people who are African American. Several bullet points summarize the donation process, and a paragraph answers the question, “Does donation fit in with religious beliefs?” Contact information is provided.
- "Dance for Health: Active Mind, Active Body" is a Penn Memory Center program to promote healthy living for older adults through exercising, socializing, and healthy eating. The program involves weekly dance sessions and monthly intergenerational activities with students from an area high school. At the beginning and end of each 3-month session, participants are asked to complete a survey to measure well-being and satisfaction with their everyday lives. The program is held at the Ralston Center...
- This project of award-winning photographs of caregivers is featured in the Penn Memory Center's creative space, "Making Sense of Alzheimer's."
- The purpose of the Advisory Board is to provide the Penn Memory Center/Penn Healthy Brain Research Center with candid guidance, advice, and critiques. Its goal is to ensure that "our research and dissemination efforts reflect our region’s multicultural makeup and that we raise awareness about Alzheimer’s disease and brain health in the communities of Philadelphia, with a particular focus on the African American community." Board members are expected to: Know and understand the goal and mission...
- This 11-slide presentation entitled, "Developing, Implementing, and Monitoring Penn Memory Center’s Multicultural Recruitment and Retention with a Focus on African American Participants," provides information about the Penn Memory Center and its efforts to increase study enrollment of residents in the Philadelphia area who are African American.
- This 19-slide presentation was developed for use at community events in West Philadelphia, which has a large African-American population. The presentation covers the purpose of the Penn Memory Center, the difference between dementia and Alzheimer’s disease, what can be done to delay cognitive decline, the importance of Alzheimer’s research, Penn Memory Center’s involvement with the National Alzheimer’s Coordinating Center, and benefits for research participants. The content and photographs are...
- This 40-page guide provides outreach strategies and resources for providers and coalitions to better support African Americans with end-of-life issues. Chapters are: Overview, African American Focus Group Findings, Strategies for Reaching Out to African American Communities, Model Outreach Programs and Initiatives, and Resources for African American Outreach. The guide was produced in 2008 by Caring Connections and the National Hospice and Palliative Care Organization.
- The Penn Memory Center’s coordinator for diversity research composed a template for emails to be sent individually to community leaders in the African-American communities of Philadelphia. The message describes the purpose and activities of the Penn Center and its community outreach plan. A list of organizations with which the center hoped to collaborate was included. The message concluded with a request to meet so that the coordinator could obtain community input on the research recruitment...
- Wayne State University, University of Michigan, and Michigan State University provide the faculty who jointly lead the Healthier Black Elders Center (HBEC). Faculty leaders, staff, and the Community Advisory Board members work together to improve the health of older African Americans in Detroit through a combination of education and research.
- A one-page handout from the Rush Alzheimer’s Disease Center provides information for participants to share with family members about their participation in the Minority Aging Research Study (MARS) Organ Donation Program. The handout includes information on MARS, which is open to African Americans 65 years old or older; why donation is important; what to do at the time of death; and the process, including transportation, what will be removed, length of the procedure, and the follow-up report that...
- The Community Action Council at the Boston University Alzheimer's Disease Center (BU ADC) is comprised of leaders from the older adult African-American community. Members are invited to present new research studies, discuss recruitment strategies, report research findings, and provide education or feedback on specific initiatives. Standing members of the council include leaders in the greater Boston African-American community, registry participants, and collaborative partners from Boston...
- This resource describes the Student Ambassador Program at the Boston University Alzheimer’s Disease Research Center and cites a study that supports the program’s efficacy.
- This cross-sectional study examined conceptions of dementia in 92 family caregivers for persons with dementia from four ethnic/racial groups: African-American, Anglo European-American, Asian-American, and Latino. In-depth interviews explored participants' ideas about the nature and cause of dementia, known as explanatory models. These explanatory models were categorized as biomedical, folk, or mixed (folk and biomedical). Overall, 54 percent of caregivers held mixed explanatory models. Although...
- In an effort to understand cultural attitudes towards brain donation, four Alzheimer's Disease Research Centers conducted focus groups to explore beliefs about and attitudes toward brain donation among African-American, Chinese, Caucasian, and Latino research subjects and their family members. Researchers found that many of the concerns, attitudes, and beliefs about brain donation were similar across the four ethnic groups. Concerns and attitudes fell into three categories: concerns and...
- African-American, Caucasian, Asian, and Latino research volunteers were surveyed at 15 Alzheimer Disease Centers to identify predictors of willingness to assent to brain donation. Positive predictors included older age, Latino ethnicity, understanding of how the brain is used by researchers, and understanding of what participants need to do to ensure their brain will be donated. Negative predictors included African/African-American race, belief that the body should remain whole at burial, and...
- The CNN news story, "History of mistrust complicates study of dementia in African-Americans," features study participants at UC Davis Alzheimer's Disease Center and Rush Alzheimer's Disease Center in Chicago considering brain donation for family members with Alzheimer's. The participants address issues of distrust of research due to past abuses of African Americans. The article also includes a short video on "What Is Dementia?"
- This issue of the UC Davis Alzheimer's Disease Center newsletter, produced in both English and Spanish, features articles on "Ethnic disparities in brain health and dementia" and a profile of an African-American family participating in the ADC's brain donation program. These plus other articles support a call to action for individuals to join research studies at the center.
- The Forget Me Not Project aims to raise awareness of issues and concerns that affect the minority community by presenting award-winning stage plays, films, documentaries, and other performing arts projects. Dedicated to helping communities of color, the Forget Me Not Project focuses on topics related to health and wellness, including caregiving, Alzheimer’s disease, diabetes, heart disease, and prostate cancer.
- This research article provides an overview of a community-based participatory research project that involved a partnership between Indiana University and the Senior Companions Program of Catholic Charities Indianapolis. Sixty senior companions participated in focus groups to describe how the Senior Companions Program impacts their quality of life as well as that of their clients, who were predominately African Americans. The authors attribute the success of their research project to the...
- The Priority Population Toolkit is a resource for researchers who would like to work with populations facing health disparities and underrepresentation in research. Sections address these target populations: African American, Hispanic and Latino/Latina, LGBT, and People with Disabilities. The toolkit was developed by the Recruitment, Retention, and Community Engagement Program of the Center for Clinical and Translational Science at the University of Illinois at Chicago.
- “Maid’s Door” is a play written by Cheryl Davis that centers around an African-American matriarch Ida Farrell exhibiting signs of Alzheimer’s disease. The drama addresses the impacts of Ida’s changes on her family, including her adult daughter who cares for her. The Sticht Center for Healthy Aging and Alzheimer's Prevention partnered with the North Carolina Black Repertory Company to promote the play and host talk-back sessions after the play. In these sessions, experts talked with the audience...
- This study examined barriers and facilitators to clinical research participation among African Americans. Researchers conducted 8 focus groups consisting of community members and community leaders (64 total), including clergy, community healthcare providers, and service providers who may influence people’s decision to participate in research. The most common barriers to participation included fear and mistrust of research due to such factors as lack of information about research and prevailing...