Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Biomarkers
Displaying 1 - 10 of 22 resources.
- The University of Pittsburgh has created a toolkit for researchers to help them disclose Alzheimer’s-related biomarker results.
- The Duke University and the University of North Carolina ADRC offers two videos that discuss the participant experience during spinal tap and blood draw procedures.
- The Wisconsin Alzheimer’s Disease Research Center (ADRC) offers videos explaining two biomarker procedures.
- This decision aid from AGREEDementia helps patients with MCI decide whether or not to undergo brain amyloid imaging.
- Researchers assessed direct-to-consumer APOE genetic testing usage and their attitudes toward using this information in clinical trial recruitment.
- Gene Test or Not? is an online decision-making tool designed to help people decide about whether they should have the APOE genetic test.
- This paper describes the development of a standardized approach to disclosing amyloid imaging research results to people with mild cognitive impairment.
- The authors developed a document for use with potential study participants that describes the process of amyloid imaging and the implications of amyloid imaging results.
- This paper outlines a framework created by the Alzheimer’s Prevention Initiative Genetic Testing, Counseling, and Disclosure Committee for large-scale disclosure of APOE results to study participants.
- The purpose of this mixed-methods interview study was to elucidate how people with mild cognitive impairment and their study partners decide whether to enroll in clinical trials.