Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Displaying 1 - 10 of 15 resources.
- The purpose of this mixed-methods interview study was to elucidate how people with mild cognitive impairment and their study partners decide whether to enroll in clinical trials.
- Researchers conducted focus group interviews with five groups of stakeholders to ask about their views on receiving results of an amyloid positron emission tomography (PET) scan.
- GeneMatch is a first trial-independent research enrollment program designed to recruit and refer cognitively healthy adults to Alzheimer’s prevention studies based in part on APOE test results. It enrolls individuals aged 55 to 75 years who live in the United States and self-report not having a diagnosis of cognitive impairment. Participants enroll online and are provided a cheek swab kit for APOE genotyping. Participants are not told their APOE results, though the results may be used in part to...
- This two-page fact sheet developed for the Memory & Aging Project at the Knight Alzheimer’s Disease Research Center (ADRC) describes positron emission tomography (PET) and what happens before and during an appointment for a PET scan. The sheet also provides a link to more information from the Radiological Society of North America.
- This two-page fact sheet explains cerebrospinal fluid collection and potential side effects of lumbar puncture.
- This two-page fact sheet developed for the Memory & Aging Project at the Knight Alzheimer’s Disease Research Center (ADRC) describes magnetic resonance imaging (MRI) and what happens during an appointment. The sheet also addresses potential risks and provides a link to the Radiological Society of North American for more information.
- The 36-second time-lapse video shows the progression of Alzheimer's disease in the brain.
- This video featuring clinicians at the University of Kentucky's Sanders-Brown Center on Aging shows the steps in a lumbar puncture procedure.
- This three-part video series provides background on Alzheimer's disease, what cerebrospinal fluid is, what participants can expect during the collection procedure, and more.
- This short, easy-to-read booklet discusses information on Alzheimer's disease, Alzheimer's genetics, and genes and their role in our health. It also provides evidence-based information on what it means to have a family history of Alzheimer's disease. The information in the booklet is also covered in articles on NIA's website.