Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Displaying 1 - 10 of 19 resources.
- Gene Test or Not? is an online decision-making tool designed to help people decide about whether they should have the APOE genetic test.
- This paper describes the development of a standardized approach to disclosing amyloid imaging research results to people with mild cognitive impairment.
- The authors developed a document for use with potential study participants that describes the process of amyloid imaging and the implications of amyloid imaging results.
- This paper outlines a framework created by the Alzheimer’s Prevention Initiative Genetic Testing, Counseling, and Disclosure Committee for large-scale disclosure of APOE results to study participants.
- The purpose of this mixed-methods interview study was to elucidate how people with mild cognitive impairment and their study partners decide whether to enroll in clinical trials.
- Researchers conducted focus group interviews with five groups of stakeholders to ask about their views on receiving results of an amyloid positron emission tomography (PET) scan.
- GeneMatch is a first trial-independent research enrollment program designed to recruit and refer cognitively healthy adults to Alzheimer’s prevention studies based in part on APOE test results. It enrolls individuals aged 55 to 75 years who live in the United States and self-report not having a diagnosis of cognitive impairment. Participants enroll online and are provided a cheek swab kit for APOE genotyping. Participants are not told their APOE results, though the results may be used in part to...
- This two-page fact sheet developed for the Memory & Aging Project at the Knight Alzheimer’s Disease Research Center (ADRC) describes positron emission tomography (PET) and what happens before and during an appointment for a PET scan. The sheet also provides a link to more information from the Radiological Society of North America.
- This two-page fact sheet explains cerebrospinal fluid collection and potential side effects of lumbar puncture.
- This two-page fact sheet developed for the Memory & Aging Project at the Knight Alzheimer’s Disease Research Center (ADRC) describes magnetic resonance imaging (MRI) and what happens during an appointment. The sheet also addresses potential risks and provides a link to the Radiological Society of North American for more information.