Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
Asian
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- This article examines the use of geographical, location-based information to facilitate the recruitment of Korean Americans.
- This article examines barriers and facilitators to the enrollment of Asian Americans and Pacific Islanders in a dementia research registry.
- This article examines how race and ethnic background impacts sources of recruitment and eligibility for an Alzheimer’s preclinical trial.
- In this study, researchers examined the perspectives of Asian American and Pacific Islanders regarding their participation in a research recruitment registry.
- The CARE registry is addressing the gap and disparities in research participation among Asian Americans and Pacific Islanders and encourages participating in research.
- These resources, posted by the UCSF Memory and Aging Center, include FAQs and guidance for older adults, social distancing compliant activities, tips for dementia caregivers, and services to help access food, incontinence supplies, and pharmacy needs.
- This 12-minute video, entitled "GAPS," addresses the challenges presented by Alzheimer’s disease in Asian American communities.
- In this study, researchers evaluated the perceived success of recruitment and retention protocols for Native Hawaiian/Pacific Islander/Filipino adult populations. Focus groups and questionnaires were used to identify themes related to facilitators and deterrents to participation in clinical trials in these populations. Responses to animated videos and vignettes with actors regarding clinical research participation were analyzed. Researchers found that successful recruitment and retention...
- A two-sided informational card that provides seven frequently asked questions about brain donation and a testimonial from a Chinese-American study partner.
- In this paper, the authors reviewed 44 articles published from January 2000 to December 2011 to identify the experienced or perceived barriers and facilitators to health research participation for major U.S. racial/ethnic minority populations. Shared barriers to participation included mistrust and lack of access to information. Despite different expressions of mistrust, all groups represented in these studies were willing to participate for altruistic reasons embedded in cultural and community...
- An annual event billed as “the largest Chinese dementia-specific educational conference in the nation” and conducted in Chinese (Mandarin) is targeted to concerned community members, healthcare professionals, and families affected by Alzheimer’s disease and related dementia. The forum is cosponsored by the University of California Memory and Aging Center and other organizations. At the 2017 event, held on a Saturday afternoon in the Intel Auditorium in Santa Clara, CA, experts provided updates...
- The Chinese Outreach Program at the UCSF Memory and Aging Center is targeted to the Chinese-American community in the Bay Area in order to improve knowledge about dementia in the community and to promote enrollment of Chinese Americans into studies conducted by the Alzheimer's Disease Research Center. The center maintains a 14-page document on its internal wiki called MACipedia that outlines Chinese outreach initiatives and procedures. The center has also produced a two-page flyer for use at...
- A webpage of the Community Outreach Program at the UCSF Memory and Aging Center, providing information and resources.
- This article describes the results of efforts to recruit Asian Americans into longitudinal research on cognitive decline in aging. Recruitment strategies included clinics for assessment of cognitive impairment at the University of California, San Francisco campus and San Francisco’s Chinatown, lectures to local healthcare providers and community members, participation in community events, and publications in mass media. Over 200 Chinese patients were evaluated and 125 participants enrolled...
- This cross-sectional study examined conceptions of dementia in 92 family caregivers for persons with dementia from four ethnic/racial groups: African-American, Anglo European-American, Asian-American, and Latino. In-depth interviews explored participants' ideas about the nature and cause of dementia, known as explanatory models. These explanatory models were categorized as biomedical, folk, or mixed (folk and biomedical). Overall, 54 percent of caregivers held mixed explanatory models. Although...
- This paper details qualitative analysis of interviews with 23 Chinese families and extensive fieldnotes generated by project ethnographers and interviewers in order to identify sociocultural barriers to recruitment that emerged during a 4-year study of dementia caregiving among Chinese families in the Boston area. The analysis identified the following themes: dementia-related changes were construed as a normal part of aging rather than a disease, making it more difficult to identify dementia...
- In an effort to understand cultural attitudes towards brain donation, four Alzheimer's Disease Research Centers conducted focus groups to explore beliefs about and attitudes toward brain donation among African-American, Chinese, Caucasian, and Latino research subjects and their family members. Researchers found that many of the concerns, attitudes, and beliefs about brain donation were similar across the four ethnic groups. Concerns and attitudes fell into three categories: concerns and...
- African-American, Caucasian, Asian, and Latino research volunteers were surveyed at 15 Alzheimer Disease Centers to identify predictors of willingness to assent to brain donation. Positive predictors included older age, Latino ethnicity, understanding of how the brain is used by researchers, and understanding of what participants need to do to ensure their brain will be donated. Negative predictors included African/African-American race, belief that the body should remain whole at burial, and...
- This two-sided card includes six frequently asked questions about lumbar puncture and a testimonial from a Chinese-American research participant.
- This presentation designed by the UC Irvine Institute for Memory Impairments and Neurological Disorders alternates between Chinese and English and includes topics such as the aging population, ways to ensure brain health while aging, and age-related brain disease.
Resources per page:
- 10
- All