Research Participants as Collaborators: Background, Experience and Policies from the PREVENT Dementia and EPAD Programmes
The aim of this paper was to explore the impact research participant involvement had within the PREVENT and the European Prevention of Alzheimer's Dementia (EPAD) projects. The authors reported the experiences of involving research participants as collaborators in prospective cohort studies exploring early changes in the brain as pathways toward and risks for dementia. They used minutes and feedback from members of the panel and steering committee to understand the experience and impact on the studies.
Gregory S, Wells K, Forsyth K, et al. Research participants as collaborators: Background, experience and policies from the PREVENT dementia and EPAD programmes. Dementia 2018 Nov;17(8):1045-1054.