Disclosing Individual Results in Dementia Research: A Proposed Study Participant’s Bill of Rights

In this editorial, a committee of participants, caregivers, and advisory groups propose a Bill of Rights for participants in dementia research. Researchers can use this framework to proactively design clinical studies that provide the option for research participants to learn their individual research results if they choose, and in a manner that ensures study integrity.  

Walter S, et al. Disclosing individual results in dementia research: A proposed study participant’s bill of rights. J Alzheimers Dis. 2022. Epub Oct. 17. doi:10.3233/JAD-220810.