ADORE Resources Search
Alzheimer's & Dementia Outreach, Recruitment & Engagement Resources
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Displaying 1 - 50 of 515 results.
- This article examines barriers and facilitators to the enrollment of socially isolated older Black adults in an online study.
- This article explores demographic differences in intention of older adults to join an Alzheimer’s registry using national survey data.
- This article summarizes findings from a study comparing two digital recruitment methods: direct messaging and social media.
- This research article analyzes clinical trial information pages from the past 30 years to determine whether caregiver responsibilities are delineated.
- The Vanderbilt Memory and Alzheimer’s Center provides a comprehensive booklet for dementia patients and caregivers with a strong faith background.
- The Duke-UNC ADRC offers a quarterly newsletter for the general public that features research news and highlights the contributions of study participants.
- Mind Matters is a newsletter from the NYU Langone Health ADRC that provides dementia information and resources.
- The NYU Langone Health ADRC hosts events for the general public to learn about brain health and dementia.
- The Massachusetts ADRC offers an educational video about PET scans in English and Spanish.
- The University of California Davis Diverse Vascular Contributions to Cognitive Impairment and Dementia (VCID) study team produces a podcast that covers healthy aging research, dementia risk factors, and the importance of diversity in research.
- The University of Kansas Alzheimer's Disease Research Center offers a documentary featuring testimonials from patients with early-stage dementia, their loved ones, and health care providers.
- This article identifies barriers and facilitators to Alzheimer’s registry recruitment via mobile device.
- This article examines the use of geographical, location-based information to facilitate the recruitment of Korean Americans.
- This article provides the success rates for different recruitment methods used in a large-scale Alzheimer’s disease risk reduction trial.
- This resource describes the recruitment plan for an upcoming clinical trial that tests the ability of the eRADAR tool to identify patients that may have undiagnosed dementia.
- This webpage describes the NIA-funded Natives Engaged in Alzheimer’s Research (NEAR) project at Washington State University.
- The Vanderbilt Memory and Alzheimer’s Center offers a video that discusses the importance of Black and African American research participants.
- The ECHAR Network and the University of Houston have created a telenovela video series to educate the Hispanic community about Alzheimer’s risk.
- This article summarizes findings from qualitative interviews with Black and White prospective participants that identified barriers and facilitators to Alzheimer’s research recruitment.
- This article explores how narrative-based recruitment materials for African Americans may be better tailored to enhance recruitment.
- This review article describes the inclusion of underrepresented groups in NIH-funded research Alzheimer’s research.
- This article examines barriers and facilitators to the enrollment of Asian Americans and Pacific Islanders in a dementia research registry.
Accelerating Diversity in Alzheimer’s Disease Research by Partnering With a Community Advisory Board
This article presents a framework in which researchers partner with community advisory boards to accelerate the recruitment of underrepresented groups to Alzheimer’s research.- This resource describes a strategy that leverages family relationships to support the recruitment of African American adults to Alzheimer’s clinical research.
- The National Institute on Aging has created a tool called OutreachPro that enables researchers to create outreach materials tailored to their target audiences.
- NIH CEAL has created a webpage with resources to help researchers to engage diverse communities in their studies from the ground up.
- This webpage offers information about the NYU Alzheimer's Disease Research Center brain donation program.
- The NYU Alzheimer's Disease Research Center offers a webpage with information for current and prospective research participants.
- The Alzheimer’s Therapeutic Research Institute has created a promotional video that describes the research at the institute and features participant stories.
- The University of Pittsburgh has created a toolkit for researchers to help them disclose Alzheimer’s-related biomarker results.
- This resource provides recommendations for how to engage people living with dementia in all stages of clinical research.
- This resource describes barriers to recruiting Latino adults for dementia research during the COVID-19 pandemic, with an emphasis on social isolation.
- This community-engaged study identifies barriers and facilitators to clinical research participation for people living with dementia and their caregivers.
- This study identifies themes in how older African Americans perceive neurovascular clinical trials.
- The Duke University and the University of North Carolina ADRC offers two videos that discuss the participant experience during spinal tap and blood draw procedures.
- Rutgers has created a toolkit for community research based on input from community-based organizations.
- The Wisconsin Alzheimer’s Disease Research Center (ADRC) offers videos explaining two biomarker procedures.
- Duke Aging Center has a website on the 5Ts framework — a tool to help researchers employ best practices in the inclusion of older adults in their research studies.
- These resources from the National Institute on Aging highlight evidence-based, healthy behaviors that may reduce dementia risk.
- This review article presents a framework for advance care planning clinical trials that are embedded into existing health care.
- This study identifies characteristics of U.S. adults that are associated with the self-reported likelihood to participate in dementia-prevention clinical trials.
- This resource describes trends in recruitment over a 20-year period of NIH-funded Alzheimer’s clinical trials.
- This article describes how caring behaviors by recruiters impact recruitment in African American and Non-Latinx White older adults.
- This resource describes a support program in which dementia caregivers are matched Dementia Ambassadors trained to educate caregivers and provide appropriate referrals.
- This article examines barriers and facilitators to the clinical trial recruitment of Mexican and Mexican American people at risk for autosomal dominant Alzheimer’s disease.
- Watch the Hope & Empowerment Through Research video to hear about the experiences of five Alzheimer's disease research participants.
- This article provides a framework for planning disclosure and consent procedures for research studies involving participants with dementia.
- This resource summarizes key insights from the second annual Latinos & Alzheimer’s Symposium.
- This resource describes the most effective strategies to increase research participation among older African Americans, based on an analysis of peer-review studies.
- This article examines barriers and facilitators to brain donation in a group of Latino adults.