ADORE Resources Search

This article summarizes findings from qualitative interviews with Black and White prospective participants that identified barriers and facilitators to Alzheimer’s research recruitment.

This article explores how narrative-based recruitment materials for African Americans may be better tailored to enhance recruitment.

This review article describes the inclusion of underrepresented groups in NIH-funded research Alzheimer’s research.

This article examines barriers and facilitators to the enrollment of Asian Americans and Pacific Islanders in a dementia research registry.

This article presents a framework in which researchers partner with community advisory boards to accelerate the recruitment of underrepresented groups to Alzheimer’s research.

This resource describes a strategy that leverages family relationships to support the recruitment of African American adults to Alzheimer’s clinical research.

The National Institute on Aging has created a tool called OutreachPro that enables researchers to create outreach materials tailored to their target audiences.

NIH CEAL has created a webpage with resources to help researchers to engage diverse communities in their studies from the ground up.

This webpage offers information about the NYU Alzheimer's Disease Research Center brain donation program.

The NYU Alzheimer's Disease Research Center offers a webpage with information for current and prospective research participants.

The Alzheimer’s Therapeutic Research Institute has created a promotional video that describes the research at the institute and features participant stories.

The University of Pittsburgh has created a toolkit for researchers to help them disclose Alzheimer’s-related biomarker results.

This resource provides recommendations for how to engage people living with dementia in all stages of clinical research.

This resource describes barriers to recruiting Latino adults for dementia research during the COVID-19 pandemic, with an emphasis on social isolation.

This community-engaged study identifies barriers and facilitators to clinical research participation for people living with dementia and their caregivers.

This study identifies themes in how older African Americans perceive neurovascular clinical trials.

The Duke University and the University of North Carolina ADRC offers two videos that discuss the participant experience during spinal tap and blood draw procedures.

Rutgers has created a toolkit for community research based on input from community-based organizations.

The Wisconsin Alzheimer’s Disease Research Center (ADRC) offers videos explaining two biomarker procedures.

Duke Aging Center has a website on the 5Ts framework — a tool to help researchers employ best practices in the inclusion of older adults in their research studies.

These resources from the National Institute on Aging highlight evidence-based, healthy behaviors that may reduce dementia risk.

This review article presents a framework for advance care planning clinical trials that are embedded into existing health care.

This study identifies characteristics of U.S. adults that are associated with the self-reported likelihood to participate in dementia-prevention clinical trials.

This resource describes trends in recruitment over a 20-year period of NIH-funded Alzheimer’s clinical trials.

This article describes how caring behaviors by recruiters impact recruitment in African American and Non-Latinx White older adults.

This resource describes a support program in which dementia caregivers are matched Dementia Ambassadors trained to educate caregivers and provide appropriate referrals.

This article examines barriers and facilitators to the clinical trial recruitment of Mexican and Mexican American people at risk for autosomal dominant Alzheimer’s disease.

Watch the Hope & Empowerment Through Research video to hear about the experiences of five Alzheimer's disease research participants.

This article provides a framework for planning disclosure and consent procedures for research studies involving participants with dementia.

This resource summarizes key insights from the second annual Latinos & Alzheimer’s Symposium.

This resource describes the most effective strategies to increase research participation among older African Americans, based on an analysis of peer-review studies.

This article examines barriers and facilitators to brain donation in a group of Latino adults.

This webinar series from the Cleveland ADRC highlights medical information and social issues on brain health that are pertinent to the Black community.

This resource describes barriers and facilitators of dementia care through the lens of African American caregivers in rural Kentucky.

This resource explores different ways clinical researchers adapted their recruitment strategies during the COVID-19 pandemic.

This research article describes how Alzheimer’s disease clinical trial participants view the role of the study partner and how their view informs the selection process.

This article explores Alzheimer’s disease knowledge and perception within a Native American community.

This resource explores how academic health centers can more closely engage with their surrounding communities.

The Massachusetts Alzheimer’s Disease Research Center has created several guidebooks that aim to educate patients and their families on a variety of topics.

The Cleveland Alzheimer’s Disease Research Center offers information to educate patients and family members about brain donation.

These resources from the National Institute on Aging are designed to support Alzheimer’s Disease Research Centers in encouraging brain donation via their social media platforms.

This article describes how considering cultural factors can improve the care and recruitment of people with dementia from underrepresented minority groups.

In this review article, researchers summarize the importance of caring behaviors in the recruitment of older African Americans with chronic illness.

In this review article, researchers discuss the ethical aspects to consider when recruiting people with dementia for clinical trials.

This resource examines how the U.K.-based Join Dementia Research registry strongly bolstered recruitment efforts.

This article explores why and how to incorporate critical race theory into dementia caregiver recruitment efforts.

Science Friday, a podcast from WNYC Studios, has released an episode that discusses brain donation.

This resource summarizes the results from focus groups with African American older adults in which they discuss their beliefs about participation in clinical research.

In this article, researchers examine the effectiveness of a community-based strategy to recruit participants for a dementia study.

This article examines how race and ethnic background impacts sources of recruitment and eligibility for an Alzheimer’s preclinical trial.

This study tested the effectiveness of different strategies to improve the clinical trial experiences of hospitalized older adults with dementia and their caregivers.

In this study, researchers examined the perspectives of Asian American and Pacific Islanders regarding their participation in a research recruitment registry.

The University of Washington Alzheimer’s Disease Research Center has launched a Spanish language website with diverse resources for health care providers, individuals experiencing dementia, and their loved ones.

The Rush Alzheimer’s Disease Center offers downloadable activity booklets for both older adults experiencing memory loss and their families.

These three videos are recordings from the “Racism and Its Implications in Clinical Research” workshop hosted by the University of Pittsburgh Alzheimer’s Disease Research Center.

This book club hosted by the Wisconsin Alzheimer’s Disease Research Center engages community members, research participants, and study partners in discussions about Alzheimer’s disease.

Resources from the Wisconsin Alzheimer’s Disease Research Center to help inform and recruit American Indian veterans into clinical trials.

This video explains how participants in LEADS, an NIA-funded study, can choose whether or not to receive genetic results and what these results mean.

This review article from NIA provides strategies to increase awareness and participation of Hispanics/Latinos in AD/ADRD clinical research studies.

This decision aid from AGREEDementia helps patients with MCI decide whether or not to undergo brain amyloid imaging.

A collection of videos from the Johns Hopkins Alzheimer's Disease Research Center that helps raise awareness and provide education on Alzheimer's and research.

Memory Matters is an annual newsletter from the Johns Hopkins Alzheimer's Disease Research Center that highlights the center's work and offers opportunities to join a study.

Watch the Become a Research Hero video on the importance of participating in Alzheimer's disease research.

Using research results, Alzheimer's disease scientists developed materials that communicate information to participants about the risk of developing Alzheimer's.

A video webinar from NYU Alzheimer's Disease Research Center about the importance of brain donation.

The Vanderbilt Memory and Alzheimer's Center offers information about joining research studies and brain and tissue donation.

Cleveland Clinic Lou Ruvo Center offers a video, brochure, and webpage about the role research plays in helping to diagnose and find treatments for neurodegenerative diseases.

Find resources for raising awareness about Alzheimer's and helpful tips for caregivers from the University of Alabama.

This article highlights how concentrated community memory screening events can be an effective and efficient recruitment strategy for Alzheimer’s disease research.

Spotlight videos from the University of Pittsburgh Alzheimer’s Disease Research Center highlight research participants’ experiences.

Researchers assessed direct-to-consumer APOE genetic testing usage and their attitudes toward using this information in clinical trial recruitment.

This article describes how the University of Pittsburgh’s Alzheimer’s Disease Research Center used research participation stories to create messaging for recruitment materials.

This paper describes the researchers’ experiences in establishing and maintaining a diverse Alzheimer’s Disease Prevention Registry.

A report that overviews the Washington University School of Medicine Knight ADRC's “African American Participation in Alzheimer Disease Research: Effective Strategies” Workshop on research participation.

This research examined the effectiveness and differences in using both traditional and social media materials for the recruitment of African American versus non-Hispanic white participants.

This research article describes the Minority Aging Research Study's brain donation challenges, processes, and successful procurement with older African American adults.

This Spanish video encourages people to have memory testing if they are having any difficulties remembering.

This video discusses the importance of healthy volunteer participation in Alzheimer’s disease research.

A research article from the Rush Alzheimer’s Disease Research Center helps researchers learn about their participants and procedures to better advance the science of Alzheimer’s and related dementias in Latinxs.

The Mesulam Alzheimer’s Disease Research Center offers a monthly email newsletter that includes information and resources on dementia.

Gene Test or Not? is an online decision-making tool designed to help people decide about whether they should have the APOE genetic test.

This paper describes the development of a standardized approach to disclosing amyloid imaging research results to people with mild cognitive impairment.

The authors developed a document for use with potential study participants that describes the process of amyloid imaging and the implications of amyloid imaging results.

This paper outlines a framework created by the Alzheimer’s Prevention Initiative Genetic Testing, Counseling, and Disclosure Committee for large-scale disclosure of APOE results to study participants.

A video from the University of California, San Francisco, explains why diversity in research is important, and steps researchers can take to increase diversity in their studies.

This webpage, from Johns Hopkins Alzheimer's Disease Research Center, helps educate readers about why clinical research studies are important, who can participate in research, and the differences between observational and intervention studies.

The CARE registry is addressing the gap and disparities in research participation among Asian Americans and Pacific Islanders and encourages participating in research.

This infographic helps research participants learn more about the differences between clinical trials and observational studies.

With printable materials and videos, this dementia toolkit is designed to help students, health care professionals, families, and members of the community understand more about dementia.

In this one-page flyer, a research coordinator answers common research participant questions.

This booklet for research participants, patients, caregivers, and families provides information on brain health and Alzheimer's disease.

This webpage offers answers to commonly asked questions about brain and brain tissue donation.

A collection of videos about Alzheimer’s disease and clinical trials, including topics on clinical trials awareness and recruiting.

Dr. Jonathan Jackson and the Massachusetts Alzheimer’s Disease Research Center give a webinar about direct actions researchers can take to improve diversity and equity in clinical research studies.

This trailer gives viewers an overview of the documentary, Too Soon to Forget: The Journey of Younger Onset Alzheimer’s Disease, which tells the story of nine families who experienced early-onset Alzheimer’s disease.

This webinar covers the current drug therapies available to help treat Alzheimer’s disease, as well as current and future drug research studies.

This booklet helps readers understand more about Alzheimer’s disease and the impact on Native American people.

The BrainTalk series are videos as well as slides presentations on a variety of topics ranging from research participation to exercise.

This three-page PDF describes why Lewy body dementia clinical research is important, explains the development and stages of trials, and encourages people to consider joining a trial.