2013 webinar series on Alzheimer’s disease and resources

May 9, 2013

The National Institute on Aging (NIA) at the National Institutes of Health (NIH) and the Administration for Community Living (ACL) are collaborating to host a webinar series with the goals of 1) improving coordination of federal resources available to assist people with Alzheimer’s disease or other dementias and their family caregivers and 2) encouraging awareness of research participation opportunities.

NIA and ACL invite you to take advantage of these opportunities. You can register for all the webinars or just the one or two that most interest you. Registration will open approximately two months in advance of each webinar.

To view and listen to past webinars, go to

Webinar Schedule

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Webinar #1: Updates on Alzheimer’s Disease Research & Resources

Thursday, May 23, 1:30–3pm ET

Much has happened since our first overview session in May, 2012. Join this session to find out the latest detailed information on Alzheimer’s disease and related dementias, including:

  1. The updated 2013 National Plan to Address Alzheimer’s Disease
  2. Research updates & developments, including new clinical studies funded
  3. Resource updates & developments, including updates from, ADEAR, Eldercare Locator, and National Alzheimer’s Contact Center


  • Jane Tilly, DrPH, Office of Supportive & Caregiver Services, Administration on Aging, ACL
  • Nina Silverberg, PhD, Assistant Director, Alzheimer’s Disease Centers Program, NIA
  • Jennifer Martindale-Adams, EdD, Co-Director, Caregiver Center, Memphis VA Medical Center
  • Ruth Drew, Director of Family & Information Services, Alzheimer’s Association
  • Mary Osborne, Program Manager, Eldercare Locator, n4a
  • Jennifer Watson, Project Officer, Alzheimer’s Disease Education and Referral (ADEAR) Center, NIA

Moderator: Amy Wiatr-Rodriguez, ACL

Webinar #2: People with Intellectual or Developmental Disabilities and Dementia

Tuesday, June 25, 1:30–3pm ET

Alzheimer’s disease occurs three to five times more often among people with Down syndrome than the general population. People with intellectual or developmental disabilities and dementia may face unique challenges, as well as experiences similar to others with dementia. This session will cover:

  1. Overview of the scale and scope of issues
  2. Research directions and opportunities, including recruitment
  3. Specialized resources available


  • Laurie Ryan, PhD, Program Director, Alzheimer’s Clinical Trials, NIA
  • Michelle Washko, PhD, Center for Disability and Aging Policy, ACL
  • Seth Keller, MD, Co-Chair, National Task Group on Intellectual Disabilities and Dementia Practices and Immediate Past President, American Academy of Developmental Medicine and Dentistry
  • Ira T. Lott, MD, Emeritus Professor of Pediatrics and Neurology, University of California at Irvine School of Medicine
  • Andrew Morris, Administration on Intellectual and Developmental Disabilities, ACL

Moderator: Amy Wiatr-Rodriguez, AoA/ACL

Webinar #3: Diverse Populations, Health Disparities and Dementia

Wednesday, July 24, 1:30–3:30pm ET

Join this session to learn what experts know about the experience of dementia in diverse populations, and hear what researchers are doing to better understand and improve outcomes for people with dementia and their caregivers. This session will focus on American Indian/Alaskan Native/Native Hawaiian, African American, Hispanic/Latino, Asian/Pacific Islander and Lesbian, Gay, Bisexual and Transgender (LGBT) people with dementia and their family caregivers.


  • Jim Varpness, Regional Administrator, ACL
  • Neelum Aggarwal, MD, Associate Professor, Rush Alzheimer’s Disease Center
  • Lori Jervis, PhD, Associate Professor, University of Oklahoma
  • Lisa Barnes, PhD, Associate Professor, Rush Alzheimer’s Disease Center
  • Jose Luchsinger, MD, Assistant Professor, Columbia University
  • Gwen Yeo, PhD, Director Emerita, Stanford Geriatric Education Center
  • Jed A. Levine, Executive Vice President, Alzheimer’s Association, New York City Chapter

Moderator:  Amy Wiatr-Rodriguez, AoA/ACL

Webinar #4: Younger Onset Dementia

Tuesday, August 20, 1:30–3pm ET

The focus of this webinar will be on dementias that typically occur before age 65: Alzheimer’s disease, behavioral variant frontotemporal degeneration and primary progressive aphasia. This session will also discuss the specific developmental, relational, and financial impacts of younger onset dementias, as well as detection, diagnosis, resources and research directions.


  • Creighton Phelps, PhD, Director, Alzheimer’s Disease Centers Program, NIA
  • Darby Morhardt, MSW, LCSW, Research Associate Professor / Director-Education, Cognitive Neurology and Alzheimer’s Disease Center, Northwestern University
  • Sandra Weintraub, PhD, Cognitive Neurology and Alzheimer’s Disease Center, Northwestern University
  • Sharon Denny, Program Director, Association for Frontotemporal Degeneration (AFTD)

Moderator:  Amy Wiatr-Rodriguez, AoA/ACL

Webinar #5: Advanced Stage Dementia & Palliative Care

*New date* Tuesday, September 24, 1:30–3pm ET

The focus of this webinar will be on the clinical course and care of people with advanced dementia as supported by research in both nursing home and home and community-based settings. Discussion will include research directions and opportunities, including recruitment, as well as specialized resources.


  • Basil Eldadah, MD, PhD, Division of Geriatrics and Clinical Gerontology, NIA
  • Susan L. Mitchell, MD, MPH, Professor of Medicine, Harvard Medical School, and Senior Scientist, Hebrew SeniorLife Institute for Aging Research
  • Greg Sachs, MD, FACP, Professor of Medicine, Chief, Division of General Internal Medicine and Geriatrics, Department of Medicine, Indiana University School of Medicine, Scientist, IU Center for Aging Research, Regenstrief Institute, Inc., Service Line Leader for Palliative Care, IU Health Physicians
  • Greg Link, Aging Services Program Specialist, Office of Caregiver & Supportive Services, Administration on Aging/Administration for Community Living

Moderator: Amy Wiatr-Rodriguez, AoA/ACL

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